Re: Very frustrated with doctor....colleen
From: karen (anonymous@obgyn.net)
Tue Feb 27 20:52:12 2001
Colleen,
My doctor also told me that my pain would be knocked out by Lupron even
though I continued to have pain throughout the shots. Needless to say I
fired her, she consistently would'nt listen and insisted on putting me
on BCP's which I could not tolerate. My new gyn finds it interesting
that after my 3rd shot of Lupron, my pain subsided and then came right
back when I was due for the fourth shot and continued from there. This
ever happen to anyone?
I am now faced with a second surgery, lap, possible oopherectomy (my
left ovary keeps getting adhered to the bowel because of endo), possible
laporotomy and possible hysto ( I consented to all of the above because
I do not want to keep having surgeries over and over. If things look
bad take care of them now.) Keeping my fingers crossed.
--
Karen
At Tue, 27 Feb 2001, Andrea wrote:
>
>Colleen,
>I have been to 10 docs, had 4 laps and been on Lupron and Danazol each 6
>months each and all from age 21 to 24. I just had my last lap January 31st
>and that was with Dr. K in Milwaukee and I can honestly say that I have had
>zero pain since my surgery! I can not even believe I am saying this, I have
>no pain. It all matters on what doctor you see. Definitely get a referral
>from some other women in your area. I never thought I would have relief. I
>truly believe that this doctor is one of the top in the world and he got
>every bit of endo and I was a chronic pain sufferer.. I am a big believer in
>that only when they get all the endo are you relieved of your pain...
>Andrea V
>>----- Original Message -----
>From: Marcia <anonymous@obgyn.net>
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Sent: Tuesday, February 27, 2001 4:18 PM
>Subject: Re: Very frustrated with doctor
>
>> Hi Colleen:
>>
>> Yes!! Get a new doctor. If possible, go to an endo specialist. You are
>> right, endo does not magically go away with either surgery or shots.
>> There can still be microscopic endo causing your pain, or even adhesions
>> left behind by surgery. And there is no such thing as "killing" off all
>> the rest of your endo. What a quack!! The shots, whether it be Lupron
>> or Zoladex, shrink the endo tissue, not get rid of it entirely. I've
>> been through 2 surgeries and Zoladex four times, and I still have it.
>> Some are lucky enough to have remission when it is all removed
>> successfully, and the absence of their pain is the indicator. If your
>> pain is still the same, in the same spot, it's your endo, not your back.
>>
>> Good luck and get that new doc!!
>>
>> Marcia
>>
>> At Tue, 27 Feb 2001, Colleen wrote:
>> >
>> >--Boundary_(ID_VcgjMJHRuiAHviXM/LFa9A)
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>> >I went to the doctor's today for my three month Lupron shot and had a
>horrible experience. I have had pain even though I've been on the Lupron for
>three months and it has been extra bad these past couple of weeks. My doctor
>today told me that I couldn't possibly be in pain because of the endo, that
>much of it was removed in my surgery last June and that the rest of it would
>have been killed off by the Lupron. She said she was 100 percent positive my
>pain wasn't because of the endo. She went on to say that it was probably
>something else like back pain and that I should try seeing an accupuncturist
>or a chiropractor to figure this out. This is very disturbing to me. Mainly
>because I was under the impression that Lurpon doesn't always work in
>getting rid of the endo and either does surgery. I thought there were no
>guarentees with this disease. Why else would I be in pain? I am fine except
>for all this pain. It sounds like she is just giving up on me. She can't
>guarentee me anyth!
>> ing witho
>> >ut looking inside during a lap and actually seeing if there is anything
>left, right?
>> >Any input would be greatly appreciated. Am I right in thinking that I
>need a new doctor?
>> >Colleen
>> >
>> >--Boundary_(ID_VcgjMJHRuiAHviXM/LFa9A)
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>> >
>> >I went to the doctor's today for my three month
>> >Lupron shot and had a horrible experience. I have had pain even though
>I've been
>> >on the Lupron for three months and it has been extra bad these past
>couple of
>> >weeks. My doctor today told me that I couldn't possibly be in pain
>because of
>> >the endo, that much of it was removed in my surgery last June and that
>the rest
>> >of it would have been killed off by the Lupron. She said she was 100
>percent
>> >positive my pain wasn't because of the endo. She went on to say that it
>was
>> >probably something else like back pain and that I should try seeing an
>> >accupuncturist or a chiropractor to figure this out. This is very
>disturbing to
>> >me. Mainly because I was under the impression that Lurpon doesn't always
>work in
>> >getting rid of the endo and either does surgery. I thought there were no
>> >guarentees with this disease. Why else would I be in pain? I am fine
>except for
>> >all this pain. It sounds like she is just giving up on me. She can't
>guarentee
>> >me anything without looking inside during a lap and actually seeing if
>there is
>> >anything left, right?
>> >Any input would be greatly appreciated. Am I right
>> >in thinking that I need a new doctor?
>> >Colleen
>> >
>> >--Boundary_(ID_VcgjMJHRuiAHviXM/LFa9A)--
>>
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