Re: Very frustrated with doctor
From: Andrea (anonymous@obgyn.net)
Tue Feb 27 19:51:00 2001
Colleen,
I have been to 10 docs, had 4 laps and been on Lupron and Danazol each 6
months each and all from age 21 to 24. I just had my last lap January 31st
and that was with Dr. K in Milwaukee and I can honestly say that I have had
zero pain since my surgery! I can not even believe I am saying this, I have
no pain. It all matters on what doctor you see. Definitely get a referral
from some other women in your area. I never thought I would have relief. I
truly believe that this doctor is one of the top in the world and he got
every bit of endo and I was a chronic pain sufferer.. I am a big believer in
that only when they get all the endo are you relieved of your pain...
Andrea V
>----- Original Message -----
From: Marcia <anonymous@obgyn.net>
To: Multiple recipients of list ENDO <anonymous@obgyn.net>
Sent: Tuesday, February 27, 2001 4:18 PM
Subject: Re: Very frustrated with doctor
> Hi Colleen:
>
> Yes!! Get a new doctor. If possible, go to an endo specialist. You are
> right, endo does not magically go away with either surgery or shots.
> There can still be microscopic endo causing your pain, or even adhesions
> left behind by surgery. And there is no such thing as "killing" off all
> the rest of your endo. What a quack!! The shots, whether it be Lupron
> or Zoladex, shrink the endo tissue, not get rid of it entirely. I've
> been through 2 surgeries and Zoladex four times, and I still have it.
> Some are lucky enough to have remission when it is all removed
> successfully, and the absence of their pain is the indicator. If your
> pain is still the same, in the same spot, it's your endo, not your back.
>
> Good luck and get that new doc!!
>
> Marcia
>
> At Tue, 27 Feb 2001, Colleen wrote:
> >
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> >I went to the doctor's today for my three month Lupron shot and had a
horrible experience. I have had pain even though I've been on the Lupron for
three months and it has been extra bad these past couple of weeks. My doctor
today told me that I couldn't possibly be in pain because of the endo, that
much of it was removed in my surgery last June and that the rest of it would
have been killed off by the Lupron. She said she was 100 percent positive my
pain wasn't because of the endo. She went on to say that it was probably
something else like back pain and that I should try seeing an accupuncturist
or a chiropractor to figure this out. This is very disturbing to me. Mainly
because I was under the impression that Lurpon doesn't always work in
getting rid of the endo and either does surgery. I thought there were no
guarentees with this disease. Why else would I be in pain? I am fine except
for all this pain. It sounds like she is just giving up on me. She can't
guarentee me anyth!
> ing witho
> >ut looking inside during a lap and actually seeing if there is anything
left, right?
> >Any input would be greatly appreciated. Am I right in thinking that I
need a new doctor?
> >Colleen
> >
> >--Boundary_(ID_VcgjMJHRuiAHviXM/LFa9A)
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> >
> >I went to the doctor's today for my three month
> >Lupron shot and had a horrible experience. I have had pain even though
I've been
> >on the Lupron for three months and it has been extra bad these past
couple of
> >weeks. My doctor today told me that I couldn't possibly be in pain
because of
> >the endo, that much of it was removed in my surgery last June and that
the rest
> >of it would have been killed off by the Lupron. She said she was 100
percent
> >positive my pain wasn't because of the endo. She went on to say that it
was
> >probably something else like back pain and that I should try seeing an
> >accupuncturist or a chiropractor to figure this out. This is very
disturbing to
> >me. Mainly because I was under the impression that Lurpon doesn't always
work in
> >getting rid of the endo and either does surgery. I thought there were no
> >guarentees with this disease. Why else would I be in pain? I am fine
except for
> >all this pain. It sounds like she is just giving up on me. She can't
guarentee
> >me anything without looking inside during a lap and actually seeing if
there is
> >anything left, right?
> >Any input would be greatly appreciated. Am I right
> >in thinking that I need a new doctor?
> >Colleen
> >
> >--Boundary_(ID_VcgjMJHRuiAHviXM/LFa9A)--
>
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