Re: Very frustrated with doctor
From: Marcia (anonymous@obgyn.net)
Tue Feb 27 15:13:19 2001
Hi Colleen:
Yes!! Get a new doctor. If possible, go to an endo specialist. You are
right, endo does not magically go away with either surgery or shots.
There can still be microscopic endo causing your pain, or even adhesions
left behind by surgery. And there is no such thing as "killing" off all
the rest of your endo. What a quack!! The shots, whether it be Lupron
or Zoladex, shrink the endo tissue, not get rid of it entirely. I've
been through 2 surgeries and Zoladex four times, and I still have it.
Some are lucky enough to have remission when it is all removed
successfully, and the absence of their pain is the indicator. If your
pain is still the same, in the same spot, it's your endo, not your back.
Good luck and get that new doc!!
Marcia
At Tue, 27 Feb 2001, Colleen wrote:
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>I went to the doctor's today for my three month Lupron shot and had a horrible experience. I have had pain even though I've been on the Lupron for three months and it has been extra bad these past couple of weeks. My doctor today told me that I couldn't possibly be in pain because of the endo, that much of it was removed in my surgery last June and that the rest of it would have been killed off by the Lupron. She said she was 100 percent positive my pain wasn't because of the endo. She went on to say that it was probably something else like back pain and that I should try seeing an accupuncturist or a chiropractor to figure this out. This is very disturbing to me. Mainly because I was under the impression that Lurpon doesn't always work in getting rid of the endo and either does surgery. I thought there were no guarentees with this disease. Why else would I be in pain? I am fine except for all this pain. It sounds like she is just giving up on me. She can't guarentee me anything witho
>ut looking inside during a lap and actually seeing if there is anything left, right?
>Any input would be greatly appreciated. Am I right in thinking that I need a new doctor?
>Colleen
>
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>I went to the doctor's today for my three month
>Lupron shot and had a horrible experience. I have had pain even though I've been
>on the Lupron for three months and it has been extra bad these past couple of
>weeks. My doctor today told me that I couldn't possibly be in pain because of
>the endo, that much of it was removed in my surgery last June and that the rest
>of it would have been killed off by the Lupron. She said she was 100 percent
>positive my pain wasn't because of the endo. She went on to say that it was
>probably something else like back pain and that I should try seeing an
>accupuncturist or a chiropractor to figure this out. This is very disturbing to
>me. Mainly because I was under the impression that Lurpon doesn't always work in
>getting rid of the endo and either does surgery. I thought there were no
>guarentees with this disease. Why else would I be in pain? I am fine except for
>all this pain. It sounds like she is just giving up on me. She can't guarentee
>me anything without looking inside during a lap and actually seeing if there is
>anything left, right?
>Any input would be greatly appreciated. Am I right
>in thinking that I need a new doctor?
>Colleen
>
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