Re: Endo & Fibromyalgia(Angie)
From: Marcia (anonymous@obgyn.net)
Mon Feb 26 09:47:29 2001
Hi Wendi:
I didn't know you were having such problems!! Please try to see an endo
specialist (where do you live??) Dr. Redwine in Oregon is the best, and
he will evaluate your records for a fee. Sounds like with the pain down
your leg (which I have sometimes) could be endo in uterosacral ligament
(plus the lung) (did we have this conversation already?). I'm just so
sorry that you are in pain all the time. I didn't realize, and it hurts
me to know that you are hurting. Gosh darn doctors! Why are they so
stupid, and why don't they believe us when we need pain meds?
Did you check out fibromyalgia on the National Library of Medicine site?
I just checked it and there's a lot of info plus different sites within
it. Have you seen a rheumatologist yet for it?
Anyway, sorry to babble on as well. There are still answers out there.
(get a new doc). Pain-free wishes to you.
Marcia
>Hi Angie,
>I have trouble distinguishing which pain is from which disease
>personally. The doctors showed me pictures of Endometriosis and I got a
>hysterectomy for it, but the truth is that the pain I had before is
>exactly the same now. I was never one to have heavy periods, in fact
>they were for only four days, and with both of my children, I had no
>problem getting pregnant. My doctor that just did the Hyst in January
>now says he won't prescribe me pain medication because its no longer a
>gynelogical problem, but nothings changed!!! I told his nurse that
>somebody's in trouble. I refuse to get all of my female parts taken out
>and now he doesn't even want anything to do with me. What a jerk. I
>trusted him with my life and he just shattered it. Anyway, I would like
>to try that natural hormone. I doubt it if it's going to help but why
>not give it a shot? It's seems that no matter what any of the doctors
>do, I'm bound to be in pain 24 hours a day, 7 days a week for the rest
>of my entire life. It's so unfortunate. Do you know are there any
>girls that have extreme pain 24 hours a day, or does it come and go?
>It's so hard because my legs hurt so bad that it really is hard to make
>it up the stairs. I wonder if its because I've been working on my feet
>for so many years. Who knows, I just wish everyone would just feel
>better for God sakes. Wouldn't that be a beautiful thing? Babble,
>babble. Have a wonderful day and good luck to you. Any tips on
>Fibromyalgia would be greatly appreciated.
>Wendi Farbstein
>>
>>--
>>===================================================
>>At Sun, 25 Feb 2001, Wendi wrote:
>>>
>>>At Sat, 24 Feb 2001, LYNN,BASTIAN wrote:
>>>>
>>>>At Tue, 8 Dec 1998, anonymous@obgyn.net wrote:
>>>>>
>>>>>I had several lap surgeries to remove endometriosis and finally a
>>>>>hysterectomy.
>>>>>that was 1 year ago and also have Fibromyalgia. I'm in the dark on how many of
>>>>>us there are, nobody really likes to talk about having either ailment.I TO AM GOING THROUGH LAP. SURG. THURSDSAY MARCH 1ST...IF THEY FIND ENDOMETRIOSIS THEY WILL DO A FULL HYSTERECTOMY THEN AND THERE...YES I'M AFRAID , I ALSO SUFFER FROM FYBROMIALGIA. I'M NOT SURE WHAT TO EXPECT. I'M 29 AND HAVE A 10 YEAR OLD SON. IF YOU HAVE ANY INFO TO HELP ME PLEASE SEND IT ...THANK YOU LYNN 'B'
>>>>
>>>>--
>>>>LYNN 'B'
>>>>
>>>Hi Lynn,
>>>Was wondering if you have any personal information you could give me
>>>about fibromyalgia. I've researched it many times, but would like to
>>>talk to somebody that actually has it. My rheumatologist thinks I may
>>>have that, but I just don't know what to do. I also have Endometriosis
>>>and had a hysterectomy on January 15th and am still in major, major
>>>pain. Not sure. Anyway, have a great day, and if I can answer any
>>>questions for you I will.
>>>Thank you,
>>>Wendi
>>
>>--
>>adrite@hotmail.com
>>
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