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Re: Endo & Fibromyalgia(Angie)From: Wendi (anonymous@obgyn.net)Sun Feb 25 17:51:23 2001
At Sun, 25 Feb 2001, Angie wrote: > >Hey Guys, (Wendi & Lynn) I know I wasn't invited to this conversation, >but I, too, had a tah/bso 16 months ago for endometriosis. I, too, >continued to have pain. The kicker is...right after surgery I hurt from >head to toe -- not just pelvic pain. The doctors told me that I had >fibromyalgia -- I didn't buy it because I'd never had it prior to >surgery, and my "gut instinct" just told me that wasn't so. I still >have pain from endo, but the "fibromyalgia" pain is now gone. I'm not >saying that neither of you have it -- perhaps you do -- but for me, >getting the right HRT was the kick in the pants my body needed to get >rid of the awful body and joint aches. I literally felt like my body >was being torn apart. I couldn't take any of the traditional HRT they >prescribe, and finally found a good combination of natural hrt that >helped -- no, I'm not a "snake oil salesman", but it might be something >you want to check into if you think the same connection holds true for >you (no fibromyalgia BEFORE the tah/bso, but was told you have it >shortly AFTER the tah/bso). If you want more info, please contact me. I >have alot of resources on the subject that you can read for yourself. >I'm still struggling with the endometriosis pain, but the fibromyalgia >"like" pain is gone (thank goodness, I was ready to put my head in the >oven). > >I wish you both luck, and pain free days.
Hi Angie,
I have trouble distinguishing which pain is from which disease
personally. The doctors showed me pictures of Endometriosis and I got a
hysterectomy for it, but the truth is that the pain I had before is
exactly the same now. I was never one to have heavy periods, in fact
they were for only four days, and with both of my children, I had no
problem getting pregnant. My doctor that just did the Hyst in January
now says he won't prescribe me pain medication because its no longer a
gynelogical problem, but nothings changed!!! I told his nurse that
somebody's in trouble. I refuse to get all of my female parts taken out
and now he doesn't even want anything to do with me. What a jerk. I
trusted him with my life and he just shattered it. Anyway, I would like
to try that natural hormone. I doubt it if it's going to help but why
not give it a shot? It's seems that no matter what any of the doctors
do, I'm bound to be in pain 24 hours a day, 7 days a week for the rest
of my entire life. It's so unfortunate. Do you know are there any
girls that have extreme pain 24 hours a day, or does it come and go?
It's so hard because my legs hurt so bad that it really is hard to make
it up the stairs. I wonder if its because I've been working on my feet
for so many years. Who knows, I just wish everyone would just feel
better for God sakes. Wouldn't that be a beautiful thing? Babble,
babble. Have a wonderful day and good luck to you. Any tips on
Fibromyalgia would be greatly appreciated.
Wendi Farbstein
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