ENDO Messages for February, 2001: Re: Kept in the dark about illness

Re: Kept in the dark about illness

From: Marcia (anonymous@obgyn.net)
Thu Feb 22 13:01:58 2001

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Hi Jackie:

When I was in junior high, I started having a lot of stomach problems, pain, and menstrual problems--they put me through all those tests in the hospital, and all they would tell me was that it was "stress." (What did a pediatrician know anyway?). In my twenties I was diagnosed with IBS, so have been battling that ever since. Then 5 years ago a whole lot of pain with diarrhea which turned out to be endometriosis (on the bowel) (after the whole slew of tests again were negative). And that doc just closed and did no surgery to excise -- he thought hormone therapy would be best. Just recently I found out that he "neglected" to tell me all that was going on--he wouldn't even tell me what stage I was in (yes I got my records too, and he didn't tell me the half of it!!). Over the years, I've discovered that the docs don't seem to tell us everything, or what our options are with all the ramifications, and sometimes tend to think "we don't need to know" everything. Or else they may not know what the heck they are doing (sounds like your doc). I've since tried to become very informed about this disease.

I hope your new doc is an endo specialist that can get to bottom of your pain. I'll be thinking of you.

Best wishes,

Marcia

At Thu, 22 Feb 2001, Jackie wrote: >
>I have had Endo for about 3 years that I know of. I have had 3
>laparascopies to "clean out" my reproductive area.I have had a fibroid
>as big as my uterus removed off the back of my uterus . In the last 6
>months I have had chronic episodes of diarrhea , pain and frequent
>urination as well. Recently I was hospitalized and had some testing
>done. CAT scan, Upper GI , small bowel series, colonoscopy, endoscopy
>,Ultrasound of pelvic area {during which time they stopped in the middle
>and said I need to have the Transvaginal Ultrasound done . } which I
>did . I have yet to get any results and have had a few prognosis'thrown
>at me . Colitis, Crohns, Endo.attaching itself to the bowel wall
>...and so on . One of my tests I had 6 months ago suggested cystic
>changes on my ovaries and uterus, but the doc did nothing . I didn't
>even find this out until recently when requesting my records to forward
>to my new doctor. Has anyone gone through these tests for similar
>reasons or could anyone shed light on this. I am afraid I am being kept
>in the dark until all the results are in . I just need to talk to
>someone about this.
>
>--
>Jackie
>

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