Re: New sister needs to vent a little
From: anonymous (anonymous@obgyn.net)
Wed Feb 21 11:29:08 2001
Hi Colleen,
I am also from Mass, what doctor/doctors have you seen??
Just a little note from me about my experience with endo, have it for 12
yrs now, I am 32 yrs old, luckily, I have two beautiful children, after
they told me I had a 10% chance of this, after 7 laps to remove endo
from me, I had a partial hysterectomy in April 2000.....well, in Jan
2001, I had to have my left tube and ovary removed because, guess what,
the endo was back, now I am going in again in March 2001, to have the
right tube and ovary removed, because, again less than 2 weeks after my
Jan surg....endo and multiple misshaped cysts have completely covered
that........so, as I ramble, I can say from my experience, having your
uterus out will not solve your problems, it didnt for me......I had to
fight my doctor to take my right ovary out, I just want this over
with......and I will deal with the menopause issues, to me that is
better than all this pain.......all the time......
At Wed, 21 Feb 2001, Colleen wrote:
>
>--Boundary_(ID_PsPBoj1jYMJR49etzWoPlQ)
>Content-type: text/plain; charset=iso-8859-1
>Content-transfer-encoding: quoted-printable
>
>Hi all, I'm Colleen from Massachusetts and I just discovered this website a few nights ago when I was up late trying to distract myself from the pain. I am a 21 year old college student that has been suffering from endo for three years now. I have had to laproscopies, one cyst removed from my left ovary, and my appendix out as well as all the endo that they could find during my second surgery. My first lap was totally pointless in the fact that the doctor failed to remove the endo he saw while he was in there for the cyst and the appendix. I found a new gyn who performed the last surgery and she is helpful to some extent. I have also seen two other specialists for this. My problem is that I can't get the pain to stop. When I had periods I was curled up for days, and even now that my periods have somewhat stopped since starting Lupron, I am still in pain. I am constantly at the hospital or at the doctor's and seem to always been on the Naproxen or Ibuprofen. This week I am on Vicadin b
>ecause the other stuff isn't working. If I don't take the medication Im in pain, and if I do take it, I can barely function, let alone make it through school. My professors don't want to hear about my disease, they just want to penalize me for my absences from pain and doctors visits. I want to get my degree, but it's already taking me a year and half longer because of the endo. I can't deal with this anymore. I know that many of you have suffered so much longer than me, but I just want this to stop. I'm off the Lupron in two months and I know things are only going to get worse. My parents have been very supportive of me which has been a blessing. I just don't know what to do.
>Question= If a woman has her uterus out, will that stop the production of any more endo? Because if it can, I'll have it out. I know I'm young, but I just want to stop making some and try to attempt to get rid of what the doctor's can. I know there is no cure. I have no problem with not having my own children. A lot of my family is adopted and I have always wanted to adopt in addition to having my own.
>I'm so confused and angry and I'm sorry for writing such a long note but I am in so much pain and I just want it to go away. I'm sorry if I'm whiny, I just need someone to listen that can understand what I'm going through. Yes, my friends and family feel for me, but they can't understand the pain I'm going through. Thank you for letting me vent and I understand if you all hate a whiner like me. I just can't do this anymore.
>
>Love,
>Colleen
>u_cmorse@umassd.edu
>
>--Boundary_(ID_PsPBoj1jYMJR49etzWoPlQ)
>Content-type: text/html; charset=iso-8859-1
>Content-transfer-encoding: 7BIT
>
><!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
>
>Hi all, I'm Colleen from Massachusetts and I just
>discovered this website a few nights ago when I was up late trying to distract
>myself from the pain. I am a 21 year old college student that has been suffering
>from endo for three years now. I have had to laproscopies, one cyst removed from
>my left ovary, and my appendix out as well as all the endo that they could find
>during my second surgery. My first lap was totally pointless in the fact that
>the doctor failed to remove the endo he saw while he was in there for the cyst
>and the appendix. I found a new gyn who performed the last surgery and she is
>helpful to some extent. I have also seen two other specialists for this. My
>problem is that I can't get the pain to stop. When I had periods I was curled up
>for days, and even now that my periods have somewhat stopped since starting
>Lupron, I am still in pain. I am constantly at the hospital or at the doctor's
>and seem to always been on the Naproxen or Ibuprofen. This week I am on Vicadin
>because the other stuff isn't working. If I don't take the medication Im in
>pain, and if I do take it, I can barely function, let alone make it through
>school. My professors don't want to hear about my disease, they just want to
>penalize me for my absences from pain and doctors visits. I want to get my
>degree, but it's already taking me a year and half longer because of the endo. I
>can't deal with this anymore. I know that many of you have suffered so much
>longer than me, but I just want this to stop. I'm off the Lupron in two months
>and I know things are only going to get worse. My parents have been very
>supportive of me which has been a blessing. I just don't know what to do.
>
>Question= If a woman has her uterus out, will that
>stop the production of any more endo? Because if it can, I'll have it out. I
>know I'm young, but I just want to stop making some and try to attempt to get
>rid of what the doctor's can. I know there is no cure. I have no problem with
>not having my own children. A lot of my family is adopted and I have always
>wanted to adopt in addition to having my own.
>I'm so confused and angry and I'm sorry for writing
>such a long note but I am in so much pain and I just want it to go away. I'm
>sorry if I'm whiny, I just need someone to listen that can understand what I'm
>going through. Yes, my friends and family feel for me, but they can't understand
>the pain I'm going through. Thank you for letting me vent and I understand if
>you all hate a whiner like me. I just can't do this anymore.
>
>Love,
>Colleen
>u_cmorse@umassd.edu
>
>--Boundary_(ID_PsPBoj1jYMJR49etzWoPlQ)--
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)