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Re: Endo Awareness- Easy tool to help create awareness @¿@From: anonymous (anonymous@obgyn.net)Mon Feb 5 02:31:35 2001
At Sun, 4 Feb 2001, EndoSister's wrote: > >Two women, one a nurse in Australia, the other a film maker in the US in >Texas had identical experiences with endo. Misdiagnosis, unbelievable >pain dismissed as hypochondria, imagination, or "This is normal - put up >with it". > >They each determined to share their experiences with other endo >sufferers. > >They met in an internet chat room. They planned, they raised money( >Belle actually took a personal loan out.. Indebt, they were determined >to get the film finished and out to the public) and from their own >experiences with the disease and with the help of some caring doctors >and womens' support groups they made a documentary film that shows women >what they can expect when they get endometriosis and how to manage it. > >How well did they succeed? Here's a review from Mary Lou Ballweg, who >started the US Endometriosis Association 18 years ago when she couldn't >get help with her disease. > >"This video is so good that it simply must get out to the world. > >>From the beginning of the Endometriosis Association, women and girls >have shared their stories of endo - powerful, painful, poignant stories. > >Anyone who listens to these stories will be moved and forever change >their attitudes towards this disease. Now, in a wonderful documentary, >the best video ever on endo, women tell their stories for the world. If >we can get partners, friends, families, and most of all, doctors and >researchers, to view this documentary we can help change the world's >view of endometriosis." > > Mary Lou Ballweg, President > Endometriosis Association > >Review of the video "Endometriosis. The Inside Story" By Heather >Guidone > >"Endometriosis: The Inside Story," by E.B.Browne & M.M. Flores is, >simply put, one of the best coping tools a woman and her family can have >when dealing with Endometriosis. > >"The Inside Story" shows us that we are not alone with this disease and >that no one has to suffer in silence. Belle and Monica have done a >wonderful job of showing the world how it is to live with Endometriosis >- and how to get help managing it. Honest, educational, empowering and >full of the latest information, no patient or doctor who treats this >insidious disease should be without a copy of "The Inside Story" in >their video library. > >Shortly after returning from DC (within a week) Jen and I both sat down >to watch the documentary. I, for one, was very moved. I probably went >through about a dozen tissues during the course of the video. Yes, men >do cry sometimes. Just don't let out my secret :) >Much of what I saw was very familiar to me, especially after having just >come back from the walk and hearing all the testimonials of the women I >met there. There was much information that was new to me. Particularly >some of the interviews of the Endo specialists contained bits of >information that I had never heard before. >I think the fact that Jen and I had spent a weekend with you made the >video that much more powerful for me. To get a view of the daily life >for women who have more debilitating disease than Jen does was just >incredible. I sat in amazement, all the while thinking "Is this how >Jen's going to be in a few years?" It deeply saddened and angered me >that there are so many women in so much pain and relatively little is >being done about it. My respect for you and other women who have this >disease has also increased dramatically. The fact that you were able to >come to the US to show support for the cause shows how strong of an >individual you are. >I would love to see a Part II to the documentary. The more information >there is out there about this disease, the better. >Jeffrey M. Cox >Programmer/Analyst >IA Systems, Inc. > >A review From Carey and John Blondin ,who started Mendo and Carey's Endo >Survival Kit > >John and I just finished watching your video. One word comes to mind >for us - FANTASTIC. You all did a fabulous job in getting the REAL >story of endometriosis out there. There has never, in our opinion, been >a more realistic , more factual, more true to life program about >endometriosis than yours. > >This video brought John and I both to tears several times. And watching >you in surgery... man did that rip at my heart. I SO remember those >feelings that you expressed without any words at the end of your surgery >when the nurse was talking to you. > >It is a huge success in our book, Belle. Bravo to the entire team >involved. Now we can't wait until your second one. > >Excellent job . > >Carey > >"Endometriosis. The Inside Story" a US / Australian co-production has >been highly praised by other support groups all over the world as the >most powerful and complete film ever produced on this tricky >subject...One of the best tools to educate, especially your husbands and >loved ones and most of all your Doctor or Obgyn. OBGYN.net has also >published an interview with Belle Browne, the Australian nurse. You can >read it at http://www.obgyn.net/endo/articles/endo_doc_review.htm >If you have endometriosis or have a partner, friend or relative who has >it please call 1-877-581-5480 (toll free in the USA) for information >about how to get the video.or go to http://www.endometriosis.org and go to the >video page and then to the secure credit card page or call the 1-800 >number above which is just as safe and toll free.
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