Re: -ovarian remnant syndrome & endo ( CA-125 )
From: Belle (anonymous@obgyn.net)
Wed Jan 31 06:56:19 2001
Hi D.N,
Sorry for the confusion..Glad we have all angles on it.... so everyone fully
understands..It was just expressed in different ways. I hope it is clear to
everyone who didn't understand before and D.N its a pleasure to have you
here and I hope the forum will now go back to how it always was, supportive,
Caring and informative. I think we are heading back in the right direction.
Its nearly 1 am and I can not sleep ..too much ticking over in my mind..So I
am trying to exert my energy in a positive and consructive way. So please
excuse my typos and mis spelt words.
Best Wishes to you,
Belle.
>----- Original Message -----
From: D.N. <anonymous@obgyn.net>
To: Multiple recipients of list ENDO <anonymous@obgyn.net>
Sent: Thursday, February 01, 2001 12:19 AM
Subject: Re: -ovarian remnant syndrome & endo ( CA-125 )
Hi Belle,
That is what I meant that it can give a false positive test with endo. I
sure as heck wouldn't disagree if you want to have the test, you should
have it. I just meant be prepared it it comes back positive, it doesn't
necessarily mean cancer. This is what I have been told my my doctors
and from what I have read.
Best wishes,
--
D.N.
At Wed, 31 Jan 2001, Belle wrote:
>
>Hi D.N,
>
>The Only time a CA -125 gives a false positive for cancer in an endo
>sufferer... is when the endo sufferer has active endometriomas. I have just
>recently discussed this exact matter with my endo specialist..as I
requested
>a CA- 125 and he didn't want me to have it, as I had didn't have any
>endometriomas, only simple ovarain cysts but I feel we should all have the
>option , if we so desire to have this test, even if it is just for peace of
>mind, as it can save a life....with a prick of a needle. I just had to add
>this bit of information, as I really feel its important to all of us.
>Best Wishes,
>
>Belle.
>
>>----- Original Message -----
>From: D.N. <anonymous@obgyn.net>
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Sent: Wednesday, January 31, 2001 1:36 AM
>Subject: Re: -ovarian remnant syndrome & endo
>
>Hi Cathy,
>
>I am sorry to hear that you are having such problems. I don't know if
>you know or not but having a CA-125 to check for ovarian cancer will be
>difficult since you have endo, the endo will usually result in a
>positive test. So it doesn't help much with the cancer thing.
>Have you had a transvaginal ultrasound? This sometimes will show if you
>have cysts forming. Also, if you think you are cycling/ovulating try
>taking your basal body temp everyday and chart it.
>You might be able to try continuous BCPs or Prometrium to help if you do
>have a remnant left. They worked for a while for me, but I had to stop
>because of migraines and depression.
>Now I am on nothing and my cycles are getting more painful. I am not
>sure if I am going to try Syneral or not at the point.
>As far as fibromyalgia (sp?), I don't know. I know if you are not
>getting adequate sleep (from my experience) you probably will feel more
>pain.
>
>With IBS, I was misdiagnosed with that before my hyst. I didn't really
>have that it was the endo.
>
>Please write again if you have more questions. I wish you the best.
>
>--
>D.N.
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