ENDO Messages for January, 2001: Re: Adenomyosis. Live with the pain or have Hysterectomy?

Re: Adenomyosis. Live with the pain or have Hysterectomy?

From: suzanne (anonymous@obgyn.net)
Sat Jan 20 18:40:12 2001

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In reply to: cristen: "Adenomyosis. Live with the pain or have Hysterectomy?"
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Cristen, I too suffered from adenomyosis, only I did not receive a dx before my hysterectomy. Unfortunately, my doctor was way off base - he dx me with ovarian cancer (due to ovarian tumors) and fibroids. A hysterectomy was ordered immediately. When I awoke, I heard a new word - endometriosis. I had severe invasive endo, adenomyosis and severe dense adhesions. My female organs were all retroverted and fixed to my spine.

You are lucky in that you have dx of adeno, but the final dx is removal and pathology of the uterus. I was 39 when I had my hysterectomy, I had two children ages 6 and 8. I have found great relief through the removal of my uterus from the adenomyosis symptoms. But his doc also removed both my ovaries and that has prosed quite a problem for me.

Please know that hysterectomy is a cure for adenomyosis, but it is not a cure for endometriosis. Please consider all your options and do all your research before submitting to hysterectomy. If there is any thing else I can do to help, please let me know. I know the pain you are going through and hope you find relief.

-- suzanne

At Sat, 20 Jan 2001, cristen wrote: > >Hello I am new to this forum and would appreciate any information that >is given. > >I was diagnosed with adenomyosis in september and have been struggling >with the notion of a hysterectomy. I am only 32, but I have had this >pain for over 15 years. I have been on birth control to help with the >irregularity of my periods and the bleeding. But it is the cramping and >the painful intercourse that are the worst. I also have severe cramping >after orgasm and read here on the forum that it could be related to >adhesions, which I have also been diagnosed with. We have two boys, one >10 and the other 2. We also had a miscarriage between them at 21 weeks >(5months)a daughter that I was later told could be related to my >condition. We (mostly my husband) feel we would regret not being able >to have another child if I were to have a hysterectomy. However, the >pain has gotten a lot worse in the last four years and I am blouting and >cramping even when I am not due for or on my period. My doctor has said >that the only way to completely get rid of the pain is to have a >hysterectomy. > >I suppose what I am asking for is some support from others who have gone >through or are going through the same situation. If anyone can give >some help I thank you. > >-- >cristen gerum >

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In reply to: cristen: "Adenomyosis. Live with the pain or have Hysterectomy?"
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