Re: 3 years of endo
From: jessica (anonymous@obgyn.net)
Tue Jan 9 19:40:06 2001
hi linda:
i was also diagnosed with IBS and endo, but it ended up being just endo.
a lot of women are diagnosed with IBS because the symptoms are similar
to endo: bloating, gas, constipation or diarrhea.
my advice is to completely cut out wheat and see what happens.
i'm not kidding - i cut out wheat and the bloating and bowel issues went
away.
here is a good resource about endo and diet: The Fibroid Tumor and
Endometriosis Self Help book by Susan Lark.
Hope it works for you.
--
Jessica
At Wed, 3 Jan 2001, Linda wrote:
>
>Hi, my name is Linda. I'm 25 and have been dealing with endo for about
>3 years now. I've had 2 laporoscopy's to day and am contemplating a
>hystorectomy.
>
>The first scopy was done 3 years ago where 1 tiny spot of endo was
>found. Afterwards, I went on with life as usual thinking that
>everything was better because I wasn't given any type of medication for
>treatment after the procedure.
>
>After about 6 to 8 months I started to feel the pain and swelling that I
>associated with the disease the first time and went to the doctor again.
>Well, I had another scopy and it was determined that it was stage III
>endo. There were muliple areas with a lot of scarring and organs
>adheared to other organs. Needless to say, I felt a lot better after
>the surgery and was then put on the pill to keep my hormones in check.
>
>Well, now it's been about a year and a half later and I have been
>suffering the same symptoms for about 6 months. I have decided to
>switch to another OBGYN since the one that I had gone to previously for
>the disease stated that the endo had not come back because he did such a
>good job with the last one, but yet, he couldn't figure out how to make
>me feel better.
>
>I have been on numerous medications, including the birth control pill,
>depo-Lupron, depo-Prevera, Danazol, ect and now the doctor that I am
>seeing now is sugesting that the problem I am having could be both endo
>and IBS (Irrital Bowel Sydrom) I have gotten a second opinion on the IBS
>and am going in to see a specialist GI doctor to rule out that
>possibility and then will have to deal with different alternatives to
>help with the disease.
>
>I have already had 2 scopes, and both my husband and I have determined
>that we are happy without having any children so a hysterctomy is a
>serious thought in our minds. The only problem that I am having is that
>many people feel that I am too young for the procedure so now I don't
>know what to do.
>
>I would really appreciate any input from anyone regarding this
>situation. i am just tired of hurting and wish to get on with my life.
>
>Thank you for your time.
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