Re: Hello everyone, i just found your forum
From: Amy (anonymous@obgyn.net)
Mon Dec 4 13:25:58 2000
thank you very much....Amy
-----Original Message-----
From: Tanya Strom [mailto:anonymous@obgyn.net
Sent: Monday, December 04, 2000 12:03 PM
To: Multiple recipients of list ENDO
Subject: Re: Hello everyone, i just found your forum
It is too bad that you didn't go tot he clinic when you had the first
opportunity. It is my experiment that GYNs are not the ones to go to for
proper pain management. I see my family doctor for that because she is more
familiar with it, more comfortable doing it and I am able to get into to see
her more easily than my GYN. If you are still able to get a referral to a
pain clinic and still experience ongoing pain I would suggest that you do
so. They typically are able to provide a wide range of possibilities for
pain management, including narcotics if appropriate. They will be able to
provide you with the most up-to-date and most useful treatments for pain
management that are available. They also offer support groups and usually
some non-traditional options such as acupuncture, massage, etc. It would
certainly be worth your while if you still require treatment for pain.
You are fortunate to have a clinic that you can go to. I do not have a
clinic to go to in my province so I have to relay on my family doc.
Thankfully she has a great deal of experience in Palliative Care, which
requires a great deal of pain management, so I am being managed reasonably
well by her. I still don't have the resources available to me for more
up-to-date treatments and more advanced treatments that a pain clinic could
possibly offer. As you can likely tell I am a huge advocate for pain
clinics and hope that I can make it possible for one to exist in my province
in the next few years.
Tanya
>----- Original Message -----
From: Amy <anonymous@obgyn.net>
To: Multiple recipients of list ENDO <anonymous@obgyn.net>
Sent: Monday, December 04, 2000 10:24 AM
Subject: Re: Hello everyone, i just found your forum
> My doctor stopped giving me vicodin 2 weeks after a partial hysterectomy.
I
> was so angry. She refeered me to a pain management clinic but i was so
angry
> with her that i told her to go to the stupid clinic herself. Now as time
as
> passed and i figured out another way to get my vicodin im wondering about
> the clinic, what types of things do they do there? Amy
>
> -----Original Message-----
> From: Tanya Strom [mailto:pac.trust@sk.sympatico.ca]
> Sent: Monday, December 04, 2000 8:11 AM
> To: Multiple recipients of list ENDO
> Subject: Re: Hello everyone, i just found your forum
>
> Hi Kaz,
> Welcome,
> I was reading your message and had a couple of questions. You said that
you
> were using naproxen and Tylenol for pain and that the doc couldn't give
you
> anything else. Why is that? Are you allergic? There are other NSAIDs
that
> work very well for many women with endo, such as Toradol, Ponstan, Indral.
> There are also many women who find it necessary to use narcotics for pain
> control. Unless you are allergic or have some other medical situation
that
> doesn't allow the use of NSAIDs or narcotics, your doctor CAN give you a
> script for better pain management. He/she just doesn't want to. That is
> usually because they do not know enough about the drugs to prescribe
them -
> honest! If you are in pain and not getting good management please ask
your
> doctor for a referral to a pain management centre. These centres
specialize
> in pain management for those who experience chronic pain, ongoing pain.
> They are up-to-date with the most effective and newest treatments and can
> offer you many more options than the doc you are seeing now for pain
> control. I hope this helps.
> Tanya
>
>> ----- Original Message -----
> From: Kaz <silvermoon333@fiacom.com>
> To: Multiple recipients of list ENDO <endo@forum.obgyn.net>
> Sent: Sunday, December 03, 2000 1:29 PM
> Subject: Hello everyone, i just found your forum
>
> > hiya
> > i am 33, have two kids, 11 and 16. i had surgery 6 years ago to help
> > with the endo. i was pretty much painfree for about 5 years, however
> > last year the symptoms came back with a vengance. i have had an
> > ultrasound that revealed i have a tumor in my uterus. my gyn was very
> > forthcoming to helping me, and laid out all options in front of me. i
> > dont respond well to hormones so i have opted for surgery. this time
it
> > will be a hysterectomy. the pain has gotten to be chronic, the
> > painkillers dont do much to help. i can tell you all that i am
relieved
> > to find other women that have the same symptoms, same problems as me.
i
> > know now that i am not alone, that this is not in my head. i think us
> > as woman are more likely to push on and ignore what is going on with
our
> > bodies because we are told so often just to get over it, that is normal
> > to be in discomfort. i have come to realize, no, it is not normal. so
> > far, i have nothing to offer besides support. but soon i will share
how
> > my treatment is going. i am only taking naproxen and tylenol right
now.
> > my doc told my that was about all he could give me. my surgery will be
> > in january some time. this has affected my professional life, my role
> > as a mother and wife. i am blessed with an understanding husband that
> > is there for me. so i consider myself lucky. this pain is constant,
it
> > is in my back and it wakes me up at night. i used to be high energized
> > and good natured. now i am tired all the time and grumpy. i dont like
> > what i am becoming.
> > i hope to hear from all of you soon. thanks for listening
> > Kaz
> >
>
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