Re: (marlene) (((Wendy)))
From: Marlene (anonymous@obgyn.net)
Tue Oct 31 09:22:12 2000
Hi Wendy:
Sorry to hear of your pain and that your now getting miagraines.
When you mentioned your endoscopy do you mean a laporoscopy, cause that
is really the only way they can see the endo. I hope your gyne is an
endo specialist. With me I think that if I had seen one 2 years ago I
would have been diagnosed earlier and maybe would have had my organs
left in tact.
It's good that you are researching endo and IBS it's your body and you
should feel informed about what's happening to it and if your faced with
difficult decisions about surgery you'll be going into it with open eyes
so to speak.
My thoughts are with you!!!
Take Care and hugsss
Marlene
At Tue, 31 Oct 2000, wendy wrote:
>
>I just read your story. I have that gnawing pain on my right side and
>it feels like someone is ripping out my insides. I didn't start really
>feeling sick until about 4 months ago. I started having stomach
>problems that were similar to GERD at least I thought. My endoscopy was
>normal. I had been having a lot of right sided lower abdominal pain(
>almost like contractions, like when you are in labor).. It would hurt
>to sit or stand. At times I felt like my whole side was stiff. I
>noticed a pattern of this happening every three to 4 weeks. I spoke
>with my GI doctor after the endoscopy and stated to him what was
>happening and he stated that he suspects IBS and kinda of chuckled and
>stated that I might have endo. I begin to check everything out on the
>internet on both IBS and Endo. I made an appointment to see the GYN and
>informed her that there is endo in my family. The last cycle I had
>before this one I was in the most pain. When I saw my Gyn she stated
>that I have dysmenorrhea and also went over the treatment plan for endo.
>I started on Ortho Cyclen(prescribed this form of bc because of my
>migraines. The next cycle came and I still had the pelvic pain and
>heavy period and only a little bit of the right sided pain. But my
>migraines were worse than ever. I am now starting Mircette.
>
>At Mon, 30 Oct 2000, Marlene wrote:
>
>>Hi Angie:
>>
>>Sorry to hear that your husband isn't being supportive with you right
>>now.....this disease affects not only us but the people around us that
>>love us. Unfortunately as much as our loved ones want to be
>>understanding...they truley don't know what we go through....
>>
>>I don't know how long you have had endo but I am wondering if he has
>>read anything about it....there are some informative sites and a lot of
>>personal pages that include other women's stories. Perhaps if he read
>>some of these stories it would broaden his understanding and realize how
>>hard it is for endo suffers, aside from the pain we deal with....the
>>loss of the quality of our lives, the inability to do what we use to do
>>or want to do.
>>
>>Belle's video can be quite helpful too.....after viewing it he will see
>>the other women being interviewed probably say the same things you have
>>said to him....Know that is what happened in my case.
>>
>>If you would like you can let him read "my story"....I don't know if it
>>will help..but it just might....to know that other women are
>>experiencing the same thing. When I was first diagnosed....only in June
>>of this year I showed my husband many personal stories I had found on
>>the net.
>>
>>http://homepages.go.com/~marsbar37/endostory.html
>>
>>Big warm hugss to you and know your not alone!!!
>>
>>--
>>Marlene
>>
>>At Mon, 30 Oct 2000, Angela wrote:
>>>
>>>Hello,
>>>I really need to vent right NOW!!! I really just need a really good cry. I
>>>am so upset with my husband right now.
>>>Well I went to my Dr. appt. today! The doctor wants me to continue taking
>>>the bcp's for 2 more months so Dec. 7th and am going to see her and she is
>>>going to decide whether to do another lap or not. Anyway I told my husband
>>>that and he said its hard for him to take time off so we will NEED to
>>>schedule it according to when he can take time off. Also 10 min. ago I
>>>talked to him and he wanted to go running with me tonight and I said I dont
>>>know whether I am running tonight because I am not feeling well today (
>>>nothing new ) and he says he doesnt have time for this. My husband does not
>>>know what I am going through and it really pisses me off. Its not a *&&&*&&
>>>joke I need this DAMN surgery. I am sick of being tossed around by the
>>>doctor, oh take this pill, no take this pill oh if that dont work take this
>>>pill, and it that doesnt work keep a damn log!!!! Shit!!! I dont have time
>>>for this I have a 7 1/2 month old that I like her to be happy 24 hours a
>>>day!!! I can't be sick anymore. And I will not schedule the operation around
>>>my husbands time, my parents will have to take care of my daughter. My
>>>husband doesnt want to believe that I have a disease. He is being very
>>>selfish. Who cares how I am feeling as long as he is happy, thats all that
>>>really matters. angie
>>
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