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Re: (marlene)

From: wendy (anonymous@obgyn.net)
Tue Oct 31 08:09:08 2000


I just read your story. I have that gnawing pain on my right side and it feels like someone is ripping out my insides. I didn't start really feeling sick until about 4 months ago. I started having stomach problems that were similar to GERD at least I thought. My endoscopy was normal. I had been having a lot of right sided lower abdominal pain( almost like contractions, like when you are in labor).. It would hurt to sit or stand. At times I felt like my whole side was stiff. I noticed a pattern of this happening every three to 4 weeks. I spoke with my GI doctor after the endoscopy and stated to him what was happening and he stated that he suspects IBS and kinda of chuckled and stated that I might have endo. I begin to check everything out on the internet on both IBS and Endo. I made an appointment to see the GYN and informed her that there is endo in my family. The last cycle I had before this one I was in the most pain. When I saw my Gyn she stated that I have dysmenorrhea and also went over the treatment plan for endo. I started on Ortho Cyclen(prescribed this form of bc because of my migraines. The next cycle came and I still had the pelvic pain and heavy period and only a little bit of the right sided pain. But my migraines were worse than ever. I am now starting Mircette.

At Mon, 30 Oct 2000, Marlene wrote:

>
>Hi Angie:
>
>Sorry to hear that your husband isn't being supportive with you right
>now.....this disease affects not only us but the people around us that
>love us. Unfortunately as much as our loved ones want to be
>understanding...they truley don't know what we go through....
>
>I don't know how long you have had endo but I am wondering if he has
>read anything about it....there are some informative sites and a lot of
>personal pages that include other women's stories. Perhaps if he read
>some of these stories it would broaden his understanding and realize how
>hard it is for endo suffers, aside from the pain we deal with....the
>loss of the quality of our lives, the inability to do what we use to do
>or want to do.
>
>Belle's video can be quite helpful too.....after viewing it he will see
>the other women being interviewed probably say the same things you have
>said to him....Know that is what happened in my case.
>
>If you would like you can let him read "my story"....I don't know if it
>will help..but it just might....to know that other women are
>experiencing the same thing. When I was first diagnosed....only in June
>of this year I showed my husband many personal stories I had found on
>the net.
>
>http://homepages.go.com/~marsbar37/endostory.html
>
>Big warm hugss to you and know your not alone!!!
>
>--
>Marlene
>
>At Mon, 30 Oct 2000, Angela wrote:
>>
>>Hello,
>>I really need to vent right NOW!!! I really just need a really good cry. I
>>am so upset with my husband right now.
>>Well I went to my Dr. appt. today! The doctor wants me to continue taking
>>the bcp's for 2 more months so Dec. 7th and am going to see her and she is
>>going to decide whether to do another lap or not. Anyway I told my husband
>>that and he said its hard for him to take time off so we will NEED to
>>schedule it according to when he can take time off. Also 10 min. ago I
>>talked to him and he wanted to go running with me tonight and I said I dont
>>know whether I am running tonight because I am not feeling well today (
>>nothing new ) and he says he doesnt have time for this. My husband does not
>>know what I am going through and it really pisses me off. Its not a *&&&*&&
>>joke I need this DAMN surgery. I am sick of being tossed around by the
>>doctor, oh take this pill, no take this pill oh if that dont work take this
>>pill, and it that doesnt work keep a damn log!!!! Shit!!! I dont have time
>>for this I have a 7 1/2 month old that I like her to be happy 24 hours a
>>day!!! I can't be sick anymore. And I will not schedule the operation around
>>my husbands time, my parents will have to take care of my daughter. My
>>husband doesnt want to believe that I have a disease. He is being very
>>selfish. Who cares how I am feeling as long as he is happy, thats all that
>>really matters. angie
>




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