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Re: Looking for help

From: Marianne (anonymous@obgyn.net)
Thu Sep 28 14:35:36 2000


I just signed up for this site two days ago, this is my first time interacting with you all. I have only been suffering for two years now, so I feel like everyone else has had it alot worse than me, however I AM still suffering. I had my first lap in January and my doctor wants to do another before the end of the year. This pain mapping thing, I have only heard a couple things about it. I would really like more info on how effective it is, how often you have to go in, does the endo still continue to spread, like to your bowels and stuff, how do you find doctors who specialize in it, so many questions, I just don't know where to go to answer them. It sounds like a wonderful plan, if it works. Any help would be great, thanks. Marianne --- sela <anonymous@obgyn.net> wrote: > I am having my 5th surgery next Wed (Oct 4th). This
> time, however, I will
> be awake for part of it. It is called "Conscious
> Pain Mapping." It is
> supposed to help the doctor locate exactly where the
> pain is. They will
> poke around and ask me if it hurts and from 1 to 10
> how much. I think this
> is a good idea for anyone who has undergone multiple
> laps and still is in
> pain. I think it will help in locating where it
> hurts better. Ask your doc
> about it. I think it sounds like a wonderfully
> brilliant thing.
> -----Original Message-----
> From: Melody <robertsmel1716@aol.com>
> To: Multiple recipients of list ENDO
> <endo@forum.obgyn.net>
> Date: Tuesday, September 26, 2000 6:53 PM
> Subject: Looking for help
>
> >Hello, I just found this site and have many
> questions. I have been
> >dealing with this for about 7 years now. I have
> gone from taking Motrin
> >800mg every 2 hours, to Naproxen, to Ponstel and
> now I am taking
> >Meclofenamate. I also have done birth control for
> hormone theapy and
> >Lupron shot for six months. My pain has gotten so
> bad that I am at the
> >point of wanting a hysterectomy but I have Kaiser
> for health insur. and
> >they don't do surgery until their last opption. My
> question is " how
> >many more years and how many more meds. do you
> think I will have to go
> >through?" I am just at the point of missing a day
> of work at least once
> >a month and I really don't like taking all the meds
> just to get through
> >the day. I have seen 4 differant doctors and they
> all want to "put a
> >band-aid" on the thing. I am really tired of the
> "lets try this next"
> >Is there hope??
> >
> >--
> >Hoping, Melody
> >
>

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