Re: Looking for help
From: Helen (anonymous@obgyn.net)
Thu Sep 28 01:43:56 2000
Hello Amy
I have only just joined this group so didn't see your original e-mail.
I understand why you made the decision. I have had endo since I was 12, I'm
now 32. I would have had a hysterectomy a long time ago, but I'm not sure
if I want children or not and don't want to take away that chance.
You have to do what is right for you and a third lap was your choice and
your decision.
Good luck
Helen Day
Perth, Western Australia
>From: Amy <anonymous@obgyn.net>
>Reply-To: anonymous@obgyn.net
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Subject: RE: Looking for help
>Date: Wed, 27 Sep 2000 09:40:35 -0500
>
>Ok ladies this is Amy...well i made it all the way back to the operating
>room and decided not to have a full hysterectomy....My doc freaked !!! So
>did my whole family that flew in. So we've decided on having my 3rd
>larotomy
>and were going to clean up the endo as much as they can and start lupron
>again. Im very happy with my decision because last time i got a beautiful
>son out of doing it this way..so wish me luck..in the meantime im in such
>horrible pain and my left ovary is so enlarged and covered in masses that
>you can see it protruding from my belly. Im living on pain killers and im
>hating it..I hope you all support me in my decision. I just feel at age 25
>i
>dont want to lose everything...thanks..Amy
>
>-----Original Message-----
>From: sela [mailto:anonymous@obgyn.net
>Sent: Tuesday, September 26, 2000 8:37 PM
>To: Multiple recipients of list ENDO
>Subject: Re: Looking for help
>
>I am having my 5th surgery next Wed (Oct 4th). This time, however, I will
>be awake for part of it. It is called "Conscious Pain Mapping." It is
>supposed to help the doctor locate exactly where the pain is. They will
>poke around and ask me if it hurts and from 1 to 10 how much. I think this
>is a good idea for anyone who has undergone multiple laps and still is in
>pain. I think it will help in locating where it hurts better. Ask your
>doc
>about it. I think it sounds like a wonderfully brilliant thing.
>-----Original Message-----
>From: Melody <anonymous@obgyn.net>
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Date: Tuesday, September 26, 2000 6:53 PM
>Subject: Looking for help
>
> >Hello, I just found this site and have many questions. I have been
> >dealing with this for about 7 years now. I have gone from taking Motrin
> >800mg every 2 hours, to Naproxen, to Ponstel and now I am taking
> >Meclofenamate. I also have done birth control for hormone theapy and
> >Lupron shot for six months. My pain has gotten so bad that I am at the
> >point of wanting a hysterectomy but I have Kaiser for health insur. and
> >they don't do surgery until their last opption. My question is " how
> >many more years and how many more meds. do you think I will have to go
> >through?" I am just at the point of missing a day of work at least once
> >a month and I really don't like taking all the meds just to get through
> >the day. I have seen 4 differant doctors and they all want to "put a
> >band-aid" on the thing. I am really tired of the "lets try this next"
> >Is there hope??
> >
> >--
> >Hoping, Melody
> >
>