ENDO Messages for September, 2000: Re: Looking for help

Re: Looking for help

From: Amy (anonymous@obgyn.net)
Wed Sep 27 09:38:48 2000

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Ok ladies this is Amy...well i made it all the way back to the operating room and decided not to have a full hysterectomy....My doc freaked !!! So did my whole family that flew in. So we've decided on having my 3rd larotomy and were going to clean up the endo as much as they can and start lupron again. Im very happy with my decision because last time i got a beautiful son out of doing it this way..so wish me luck..in the meantime im in such horrible pain and my left ovary is so enlarged and covered in masses that you can see it protruding from my belly. Im living on pain killers and im hating it..I hope you all support me in my decision. I just feel at age 25 i dont want to lose everything...thanks..Amy

-----Original Message----- From: sela [mailto:anonymous@obgyn.net Sent: Tuesday, September 26, 2000 8:37 PM To: Multiple recipients of list ENDO Subject: Re: Looking for help

I am having my 5th surgery next Wed (Oct 4th). This time, however, I will be awake for part of it. It is called "Conscious Pain Mapping." It is supposed to help the doctor locate exactly where the pain is. They will poke around and ask me if it hurts and from 1 to 10 how much. I think this is a good idea for anyone who has undergone multiple laps and still is in pain. I think it will help in locating where it hurts better. Ask your doc about it. I think it sounds like a wonderfully brilliant thing. -----Original Message----- From: Melody <anonymous@obgyn.net> To: Multiple recipients of list ENDO <anonymous@obgyn.net> Date: Tuesday, September 26, 2000 6:53 PM Subject: Looking for help

>Hello, I just found this site and have many questions. I have been
>dealing with this for about 7 years now. I have gone from taking Motrin
>800mg every 2 hours, to Naproxen, to Ponstel and now I am taking
>Meclofenamate. I also have done birth control for hormone theapy and
>Lupron shot for six months. My pain has gotten so bad that I am at the
>point of wanting a hysterectomy but I have Kaiser for health insur. and
>they don't do surgery until their last opption. My question is " how
>many more years and how many more meds. do you think I will have to go
>through?" I am just at the point of missing a day of work at least once
>a month and I really don't like taking all the meds just to get through
>the day. I have seen 4 differant doctors and they all want to "put a
>band-aid" on the thing. I am really tired of the "lets try this next"
>Is there hope??
>
>--
>Hoping, Melody
>

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