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Re: A question for Belle about pain meds

From: Belle (anonymous@obgyn.net)
Sun Sep 24 04:01:42 2000


Hi Debi,

Welcome to the forum...I certainly take my hat off to you, to be serving in the armed forces..You are a credit to us all.I understand your situation and to be working in a male dominated field, you must really have a tough time and now with this current situation at the hospital .......I would be asking your surgeon if he feels comfortable operating on you at this hospital.For me, my main concern is the surgeon and his skills..I believe if you have a good endo surgeon and he is skilled at removing endo and is able to excise it all out of you... then that is what I would be doing.My last surgery a bowel surgeon was there on stand by.. in case I had bowel involvment, like the time before..which I ended up with a perforation because of an unskilled surgeon. My belief is... if you have a endo specialist and he excises your endo by using laser,scissors or scapal...it really doesn't matter....it is the endo specialist's skill that will make the difference and you want one who knows his limits and calls in other doctors if the need be.If all the endo is excised and removed.. then you should not have to have Lupron.This is my opinion Debi and others will have different ideas..I don't see it being a problem having the lupron unless it has the opposite effect on you or the side effects are worse than your actual endo..Only you can make this decision..I would suggest a few things and that is... either ask your doctor about using Synarel, which is a much lighter dose than lupron,it is inhaled twice daily ..if you have to have lupron then make sure its the monthly shot and not the 3 monthly..it takes way too long to get out of your system and if it doesn't suit you then your stuck with the side effects. I wish you all the best with your coming surgery...If thats what you decide to do. I hope I have helped you abit,again wishing you a warm welcome. Best Wishes,

Belle.

P.S Make sure you have something printed from the computer that states that there is no cure for endo..Try http://www.endometriosis.org _________________________________________________________ ----- Original Message ----- _________________________________________________________ From: anonymous@obgyn.net To: Multiple recipients of list ENDO <anonymous@obgyn.net> Sent: Sunday, September 24, 2000 4:14 PM Subject: Re: A question for Belle about pain meds

> Hello to all,
>
> My name is Debi and I have been suffering with endo since 1995. My severe
> endo was diagnosed when I had surgery to remove one of my ovaries and
tube. > At that time the surgeon was able to remove most of the endo, but
cautioned > me that it would return...slowly over the years it has returned, most
> recently with a vengeance.
>
> I was so grateful to find this compassionate forum. Although I have a
> supportive spouse, so much of this disease is not well documented and is
> certainly not well publicized. I have been reading the various e-mails
from > all you with great enthusiasm, as it is wonderful to relate with someone
else > even though it is unfortunate that it has to be a connection through pain.
>
> To give a brief synopsis of my situation, I am currently serving in the US
> armed forces and am having a most difficult time trying to keep up with
the > required physical readiness standards while suffering this debilitating
> disease. I am required to do fairly strenuous physical fitness tests
> biannually in order to remain in the service (I am only 2 years from
> retirement). I also suffer from ridicule from senior male officers who do
> not understand endo and how it affects my life.
>
> After enduring the bureaucratic red tape that is inherit to our military
> medical system, I have finally been able to consult with a surgeon who has
> given me three alternatives for treatment. 1. Lupron 2. Lap with laser
> removal of adhesions and scare tissue with follow on Lupron 3. Total
> hysterectomy. I have decided on option #2, and am scheduled for surgery
on > 30 Oct. (The surgeon indicated that I will have to sign a release
allowing > him to do a complete hysterectomy via incision if he finds excessive
> "disease" once he has gone in with the lap.) I was pretty much at peace
with > this seemingly logical decision when I made it this past week.
>
> Ironically I picked up the newspaper today and it seems that the hospital
at > which I am scheduled to have surgery is currently under investigation for
> poor patient care! Now I am writing this at 2 am, unable to sleep and
having > huge second thoughts. I am finding myself wondering if having a lap is
> really necessary and if I should try just Lupron before agreeing to more
> aggressive procedures. On the other hand, I am feeling pressure from my
> seniors as I have already told them that I was scheduled for surgery and
they > are certainly expecting a certain cure.
>
> I would truly appreciate any feedback.
> Thank you all so much,
> Debi




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