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Re: A question for Belle about pain medsFrom: anonymous@obgyn.netSun Sep 24 01:13:05 2000
Hello to all, My name is Debi and I have been suffering with endo since 1995. My severe endo was diagnosed when I had surgery to remove one of my ovaries and tube. At that time the surgeon was able to remove most of the endo, but cautioned me that it would return...slowly over the years it has returned, most recently with a vengeance. I was so grateful to find this compassionate forum. Although I have a supportive spouse, so much of this disease is not well documented and is certainly not well publicized. I have been reading the various e-mails from all you with great enthusiasm, as it is wonderful to relate with someone else even though it is unfortunate that it has to be a connection through pain. To give a brief synopsis of my situation, I am currently serving in the US armed forces and am having a most difficult time trying to keep up with the required physical readiness standards while suffering this debilitating disease. I am required to do fairly strenuous physical fitness tests biannually in order to remain in the service (I am only 2 years from retirement). I also suffer from ridicule from senior male officers who do not understand endo and how it affects my life. After enduring the bureaucratic red tape that is inherit to our military medical system, I have finally been able to consult with a surgeon who has given me three alternatives for treatment. 1. Lupron 2. Lap with laser removal of adhesions and scare tissue with follow on Lupron 3. Total hysterectomy. I have decided on option #2, and am scheduled for surgery on 30 Oct. (The surgeon indicated that I will have to sign a release allowing him to do a complete hysterectomy via incision if he finds excessive "disease" once he has gone in with the lap.) I was pretty much at peace with this seemingly logical decision when I made it this past week. Ironically I picked up the newspaper today and it seems that the hospital at which I am scheduled to have surgery is currently under investigation for poor patient care! Now I am writing this at 2 am, unable to sleep and having huge second thoughts. I am finding myself wondering if having a lap is really necessary and if I should try just Lupron before agreeing to more aggressive procedures. On the other hand, I am feeling pressure from my seniors as I have already told them that I was scheduled for surgery and they are certainly expecting a certain cure. I would truly appreciate any feedback. Thank you all so much, Debi
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