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((((Kristy))))

From: Marlene (anonymous@obgyn.net)
Sat Sep 23 11:21:03 2000


Hi Kristy:

Good idea I will for sure contact the ministry.

I think I was most angered the other day because of the many facets this disease affects a person on. This has all been building up for me and I am just getting so frustrated and needed to vent. It is so difficult and tiresome enough to endure continual unrelenting pain have it affect your life so vastly and the others around you who watch you suffer, contend with attitudes of the medical profession, and also how your life can be impacted financially if your no longer able to work.

I know that others have suffered for many many years and I do find strength from you and others here at this forum. I am so thankful that I found this support from other sufferers who truley understand and how we support one another in our struggles.

I hope you get over your cold and pray that you don't have anything else going on with you, (IC). You are contending with enough conditions as it is.

I hope you have a comfortable weekend...you are in my thoughts as well.

((((hugssss))))

At Fri, 22 Sep 2000, Kristy wrote: >
>Marlene,
>
>That is unbelievable what your dr said about not getting coverage for a Pain Clinic under your plan to try to help you. Is there any way that you can get help from the Ministry of Health as far as a getting recognition for this problem?
>
>I hope that all works out for you real soon my friend. I too have still been in a lot of pain and part of the reason for that is b/c I'm having bladder symptoms. My dr thinks that it might be a condition called Interstitial Cystitis. I hope not b/c I'm more concerned about the endo messing with my bladder at this point, and right now that's kind of what it feels like. We shall see what happens but for now I'm having to live on the painkillers and as I told Amanda yesterday I'm still trying to get rid of this ugly cold. I've been making sure that I take the Robitussin every 4 hours as it says so that I can keep the coughing down.
>
>I tried to go a day without it thinking that I would continue to feel good and boy was I wrong. I will be sticking with this for another few days and then see whether or not my bladder pain goes down as my stress level goes down or else my dr will be sending me off for cystoscopy to make sure that I don't have something else more serious going on.
>
>I will keep you posted on that and the other things going on with me.
>
>Please take care and know that you are always in my thoughts.
>
>Kristy S :)
>Jacksonville, FL




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