Re: adenometreosis/endo- does diet help???THANKS!!!!nsmitch
From: nsmitch (anonymous@obgyn.net)
Tue Sep 19 21:47:59 2000
Jennifer you are more than welcome. I can truly relate to a doc who doesn't
listen. I once had one who told me I was a waist of his time and he had
other ill patients whose time I was eating up with him. I have a great
gastro but he has awful bedside manner. I have decided that I'd rather have
a very informative doc than not. (I have other gastro problems than
IBS....My pulmonary problems are due to an esophagus condition). I have
literally yelled at him as he's walked out of the room to stop and explain
what he'd just said to me (i.e . don't pat me on the head and send me on my
way) Please keep me posted about things and feel free to email m personally
if you'd like. It is NEVER wrong to be an informed patient!! My best to you,
Sally
>----- Original Message -----
From: "jennifer" <anonymous@obgyn.net>
To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
Sent: Tuesday, September 19, 2000 11:20 AM
Subject: Re: adenometreosis/endo- does diet help???THANKS!!!!nsmitch
At Mon, 18 Sep 2000, nsmitch wrote:
>
well, i checked your message at the right time- i just got back from a
gastro doctor appt- due to the antibiotics they gave be for bowel
problems and my lap in august i have developed anti biotic associated
colitis- chlostri difficil bacteria causes it- i have under gone one
round of treatment and this was my check up- now he tells me that i
could have another flare up with it and may have to go on vancomycin
again- which upset me visibly in the office because of the possibility
of pregnancy this month- i don't want to be on that with that at the
same time- i asked him if i could do the poop test today to test for it
and he said lets wait a week- which is what he did the first time i saw
him and is the reason i was having 15 bowel movements a day- so i must
of turned 4 shades of purple- i think my husband was scared- and said
that i want the lab slip to do the test when i want this week and i
really do not want a sigmo-test which is what is next- tears came to my
eyes because this guy is non responsive from the start and i knew today
would be a problem- when i was leaving he said that i should give him a
chance to treat it etc- give him a chance - i have been pooping
constantly off and on with bouts of constipation for 2 months now-
anyway- i am the self educating type and i am thankful for my obgyn- who
will listen to me- i will do this test and then change doctors i think-
and you are right- the doctors must confer- the one my ob wants me to go
to is in the same doctors office as this one- so i don't know if there
is a conflict of interest that could arise- i want no more pills and no
more procedures and it is looking like i won't get it- after the
antibiotic bug is gone- i might begin my search for a repro-
endocrinologist- probally hard to find here in new orleans
anyway- i wanted to thank you for your message- it reassures me that i
am not some overreactive emotional woman who "knows to much" about
stuff- i research everything- and i think this doctor didn't appreciate
my questions- anyway- thanks again- hope to hear from you again-
jennifer
>Jennifer,
>First you should be aware that many doctors still, incorrectly, believe
that
>endo and adeno go away with pregnancy. That is a fallacy. For some women,
>yes, it does seem to put it into remission with some women never having a
>flair up again. (The same can be said for hysterectomy with or without
>hormone replacement therapy.) There is no one single answer for everybody.
>GnRH analogs do the same to your body as pregnancy or menopause does..it
>stops ovulation (Gonadatropin Releasing Hormone). They used to say
>pseudo-pregnancy now I hear pseudo-menopause. Go for pregnancy if this is
>when you want to get pregnant or if you feel this may be your one chance.
>Endo is among, if not the leading cause of infertility for women, but
>getting pregnant is NOT the only answer.
>The same is true for diets. Some swear by cutting our dairy and red meats.
>Some choose other routes. Pick what works for you which means trial and
>error. Sorry.
>Because of the many other health conditions I have in addition to endo and
>adenomiosis, if I stopped eating everything each new diet there was for
each
>disease I would end up eating virtually nothing.
>Also, re: your bowel problems - has anyone checked you out for Irritable
>Bowel Syndrome (IBS)? It is fairly common with women and more so with women
>with endo and then again more so if you are like me and your endo is on the
>colon and intestinal tract. (I have had my perineum actually fused to the
>back wall of my uterus from post-op complications and endo lesions. These
>all contribute to bowel problems, diarrhea, constipation, upset stomach,
>etc.) IBS is treatable with meds and/or diet. A gastroenterologist would be
>the person to appropriately diagnose IBS and should, no MUST work in
>conjunction with your OB/GYN. It becomes much more stressful when docs deal
>with only their specialty and body part. Endo does not live in your body
>alone, however which means that passing you on to the other physician is
>unwise and unhealthy. another thing that does help that I haven't heard
>mentioned today is exercise, breathing etc. No matter how small or large
the
>amount any will help; if anything it will help with some of the physical
and
>emotional pain and I suppose some of the frustration.
>I have heard from a number of you today (my first day on this email list)
>and keep hearing difficulties working with physicians. It is paramount you
>are in control of your body and not your physician! Do not feel "Stupid" as
>one woman told me for not knowing what's what. None of us did until we got
>the Dx. Educating yourself is scary, this I do realize. And some physicians
>do not respond well to a patient that knows as much if not more about their
>disease than the doctor. If that's the case, move on to a new doc. I know
>that's rough and I have had to do it several times, but ya know what? They
>are not the ones curled up in a ball at night in pain or unable to make
love
>or go to work. You are!! If I do anything here I hope it is to help empower
>you. No more apologizing to ANYONE for the body you have. Celebrate it no
>matter how cracked it seems. (I tell you this knowing I have lived 22 years
>with endo and longer with some other things. Also, I have degenerative,
>progressively debilitating disease(s) that I may die from. I also was a
>counselor for the disabled population before I went on permanent
>DIS....)There will always be doctors who are threatened by you, but there
>will be only one you! This is your life. You are not alone nor are you
>stupid nor should you be put in the position of choosing between
appropriate
>medical care, civility and compassion VS doing what you are told and being
a
>"good girl."
>Thanks again for listening. My best to all, Sally
>P.S. Does anyone want to share where they are so we can better assist one
>another with physician lists, etc.? I am right now in Sacto., CA and moving
>to West Australia next year....
>>----- Original Message -----
>From: "jennifer" <anonymous@obgyn.net>
>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>Sent: Monday, September 18, 2000 7:35 PM
>Subject: adenometreosis/endo- does diet help???
>
>i was recently diagnosed with adenometreosis with two spots of endo in
>my cul de sac- also - i have mid cycle pain and bloating and bowel
>problems-
>
>my doctor is treating my adeno by observation and says i should try to
>get pregnant- i am wondering if i can also-
>
>my question is that i found an endo book and inside was a diet outline -
>that is leaving me starving!- i was wondering if anyone uses a diet
>program etc????
>
>--
>jennifer
>
--
jennifer
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