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Re: adenometreosis/endo- does diet help???From: nsmitch (anonymous@obgyn.net)Tue Sep 19 01:39:44 2000
Jennifer, First you should be aware that many doctors still, incorrectly, believe that endo and adeno go away with pregnancy. That is a fallacy. For some women, yes, it does seem to put it into remission with some women never having a flair up again. (The same can be said for hysterectomy with or without hormone replacement therapy.) There is no one single answer for everybody. GnRH analogs do the same to your body as pregnancy or menopause does..it stops ovulation (Gonadatropin Releasing Hormone). They used to say pseudo-pregnancy now I hear pseudo-menopause. Go for pregnancy if this is when you want to get pregnant or if you feel this may be your one chance. Endo is among, if not the leading cause of infertility for women, but getting pregnant is NOT the only answer. The same is true for diets. Some swear by cutting our dairy and red meats. Some choose other routes. Pick what works for you which means trial and error. Sorry. Because of the many other health conditions I have in addition to endo and adenomiosis, if I stopped eating everything each new diet there was for each disease I would end up eating virtually nothing. Also, re: your bowel problems - has anyone checked you out for Irritable Bowel Syndrome (IBS)? It is fairly common with women and more so with women with endo and then again more so if you are like me and your endo is on the colon and intestinal tract. (I have had my perineum actually fused to the back wall of my uterus from post-op complications and endo lesions. These all contribute to bowel problems, diarrhea, constipation, upset stomach, etc.) IBS is treatable with meds and/or diet. A gastroenterologist would be the person to appropriately diagnose IBS and should, no MUST work in conjunction with your OB/GYN. It becomes much more stressful when docs deal with only their specialty and body part. Endo does not live in your body alone, however which means that passing you on to the other physician is unwise and unhealthy. another thing that does help that I haven't heard mentioned today is exercise, breathing etc. No matter how small or large the amount any will help; if anything it will help with some of the physical and emotional pain and I suppose some of the frustration. I have heard from a number of you today (my first day on this email list) and keep hearing difficulties working with physicians. It is paramount you are in control of your body and not your physician! Do not feel "Stupid" as one woman told me for not knowing what's what. None of us did until we got the Dx. Educating yourself is scary, this I do realize. And some physicians do not respond well to a patient that knows as much if not more about their disease than the doctor. If that's the case, move on to a new doc. I know that's rough and I have had to do it several times, but ya know what? They are not the ones curled up in a ball at night in pain or unable to make love or go to work. You are!! If I do anything here I hope it is to help empower you. No more apologizing to ANYONE for the body you have. Celebrate it no matter how cracked it seems. (I tell you this knowing I have lived 22 years with endo and longer with some other things. Also, I have degenerative, progressively debilitating disease(s) that I may die from. I also was a counselor for the disabled population before I went on permanent DIS....)There will always be doctors who are threatened by you, but there will be only one you! This is your life. You are not alone nor are you stupid nor should you be put in the position of choosing between appropriate medical care, civility and compassion VS doing what you are told and being a "good girl." Thanks again for listening. My best to all, Sally P.S. Does anyone want to share where they are so we can better assist one another with physician lists, etc.? I am right now in Sacto., CA and moving to West Australia next year....
>----- Original Message ----- i was recently diagnosed with adenometreosis with two spots of endo in my cul de sac- also - i have mid cycle pain and bloating and bowel problems- my doctor is treating my adeno by observation and says i should try to get pregnant- i am wondering if i can also- my question is that i found an endo book and inside was a diet outline - that is leaving me starving!- i was wondering if anyone uses a diet program etc????
-- jennifer
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