Re: andometreosis & abdominal pain PEGGY(Jennifer)
From: Peggy (anonymous@obgyn.net)
Fri Sep 15 15:09:40 2000
At Fri, 15 Sep 2000, jennifer wrote:
Hi Jennifer,
I would have to wonder why he lasered off some spots and decided to
leave others?I am sorry that you still have the pain after having the
laporoscopy, My situation is very complicated to say the least, 4/98 I
had a hysterectomy and left ovary removed,10 days later I ended up back
in the OR due to developing a hematoma that had to be surgically drained
then because of the infection I ended up with severe adhesions and had a
laporoscopy 10/98 and 4/99,still having the pain(I switched gyns after
the infection because he kept pushing me off on other Drs.)this gyn did
another laporscopy 11/99 going in looking for endometriosis and to
remove the right ovary, and yes he did find endometriosis in the cul de
sac and on the lower bowel he decided to leave it alone.He was going to
withhold HRT for 3 months as to allow the endo to "DIE" off,but after a
couple of months all the menopause syptoms stopped so he checked my
hormone levels and found them to be in the nonmenopausal levels, I tried
Lupron for 4 months went into menopause but after the 3rd injection it
all stopped again so my Dr. checked the levels again and they were
further elevated so we discontinued the lupron, One day I saw a post on
here about a study that was being conducted using an aromatase inhibitor
so I e-mailed the Dr. that is doing the study,told him my story and he
wrote back telling me that he felt I would benefit from this
treatment,only I was not qualified to be part of the study itself, he
sent me a research paper that he did and I printed it off and sent it to
my Dr. asking him to read it and to see weither I would benefit from
this, He feels that I would and e-mailed the other Dr. for the
protocol, I just started taking the medication today so I don't know how
it will go.I am very hopeful yet very unsure with it all.My Dr. told me
that if he didn't feel this treatment wasn't right for me he would not
have persued it, so that made me feel really good about doing it.If you
have any other questions please feel free to ask, Peggy
>
>At Wed, 13 Sep 2000, Peggy wrote:
>>i'm sorry- to clarify- he lasered two spots off my cul de sac but did say- " i saw some other spots but left them alone" after reading all of the listings here- i am following up on that- - i am exactly 14 days into my cycle and have my recurrent pain right now- i want to wait and see if it disappears again and track it this month into next month- i am on no pills right now- i am hesitating trying to get pregnant because i am doubting my instincts and fearing that this pain might be something else- and do not want to bring a baby into that circumstance- if it does what i think it will - i will be trying soon-
>
>this is all so new to me- i just can't seem to type fast enough or ask
>enough questions- thanks for writing- any info will help me now- what is
>your situation???jennifer
>>At Wed, 13 Sep 2000, jennifer wrote:
>>>
>>>i have had recurrent abd pain on my right side for the past 4 months- it
>>>occurs a week or so after my period- it is a dull ache type of pain- not
>>>throbbing or sharp- kind of like something is touching something-
>>>
>>>anyway- i had a laparoscopy done aug 3 and my ob found endo on my cul de
>>>sac and a few other spots that he left alone?- i need to find out what
>>>he meant by that- also - my uterus was really soft and he said i have
>>>andometreosis- he says it can be painful but not a danger to fertiltiy?-
>>>
>>>i have the same pain right now and should be ovulating the next couple
>>>of days- so i would think it would be cyclical- i did have ultrasound
>>>and bloodwork and xrays- all of which are negative- the first month i
>>>had the pain-
>>>
>>>my questions are: any info on andometreosis- what should i do - should i
>>>see a fertility guy anyway?- and what should i do about the abd pain- i
>>>hate to keep having procedures when unnecessary- my ob said that my
>>>ovaries were fine the right one had a 2cm cyst on it and the left one
>>>was ovulating at the time- he didn't look higher than my belly button
>>>during surgery- so maybe i have spots of endo on my intestine?- he said
>>>my appendix was fine-
>>>any information would help me at this point- thanks!
>>>
>>>--
>>>jennifer
>>
>>Jennifer,
>>
>>What you Dr. meant by he saw a few spots of endo in the cul de sac and
>>that he left it alone, Means that he did not remove it, by him not
>>removing it it will not resolve your problems with your pain.
>>Endometriosis can be very painful and can also effect fertility in many
>>women. One question that you should ask your Dr. is why he left the
>>endometriosis there and why he did not remove it. has he treated you
>>with any medication for the endometriosis?Are you trying to concieve at
>>this time? If so How long have you been trying?This all depends on
>>weither you should seek out a fertility specialist, Good Luck
>>>
>>--
>>"FRIENDS THAT STICK TOGETHER" Peggy K.
>>
>>What lies behind us and what lies before us are tiny matters, compared to what lies within us.
>>
>>-Ralph Waldo Emerson (1803-1882)
>>
>--
>jennifer
>
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