Ale
From: Marlene (anonymous@obgyn.net)
Sat Sep 9 11:59:33 2000
Hi Ale:
What a beautiful name you have *smiles*....
I am so sorry to hear that you are also spending days in bed like me. We
certainly aren't having too much of a quality life right now.
Thank you for the advice about the pain doctor I will keep that in mind
if I get referred. Actually I am waiting to see a chronic pelvic pain
specialist she is a member of the International chronic pain society.
Apparently they focus on 4 different areas to ascertain where pain may
be coming from, including endo. She will hopefully give me a 2nd
opinion on my endo as my gyne here thinks "it will just get better in
time" and to "stay active", both statements seem ludicrous to me right
now.
I've not had a presacral neurectomy but have read a little about them. I
would be most interested to know how they do it, by laporoscopy or
laparotomy. Also please let me know if it works for you.
I hope that you can remain comfortable and my thoughts are with you!!!
Best Wishes
At Fri, 8 Sep 2000, sela wrote:
>
>Hi! My name is Alessandra (Ale for short). I just read your message and
>just wanted to say I can relate to you totally. I am in constant pain too
>and spend many days in bed. I too count the days till my next dr.
>appointment. This past January I went to a pain specialist and he did not
>help at all. He gave me some trigger point injections of steroids and
>anaesthesia and sent me to a massage therapist who massaged my pain into
>more pain. Please be careful of what your pain doctor does to you. Have
>you had a presacral neurectomy? I am getting one done in 2 weeks. Let me
>know how you are doing. Bye for now.
>-----Original Message-----
>From: Marlene <anonymous@obgyn.net>
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Date: Friday, September 08, 2000 8:24 AM
>Subject: Re: Good day Miss Mars and Rachel *smiles*...(Tina)
>
>>Hi Tina:
>>
>>Thanks for thinking of me *smiles*.....It would be great to have a chat
>>night again!!!!
>>
>>I am really not doing too well....I have been experiencing some
>>extremely bad pain days....spending most of my days in bed. The shots
>>that I have been taking give me some comfort...but they are also making
>>my legs sore and bruised. Although I am strong willed, seems like I
>>feel like I am running out of the energy to face this each day. It's
>>getting so hard. I am trying to hang in there for the appointment I
>>have next month with the "chronic pain specialist" but it's getting so
>>difficult.
>>
>>Anyways, sorry if this brings others down...I know we all find this so
>>difficult to deal with and I am so happy we have this forum for support
>>from others who truley know what comes with this constant pain.
>>
>>I hope you are doing well Tina, I really enjoyed meeting and talking
>>with you that night....you are a bright shining star..
>>
>>(((((hugsss))))
>>
>>At Thu, 7 Sep 2000, Tina wrote:
>>>
>>>Thinking of both of you as well! You all are such beauty's and I hope
>>>your summer days are going well! *hugs* Please let me know how you both
>>>are! Hope to see you both in chat soon!
>>>Always, ~Tina :o)~ Wishing you many Angel kisses to you and your
>>>families while you sleep tonight!
>>
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