ENDO Messages for September, 2000: Re: Side Effects of Lupron

Re: Side Effects of Lupron

From: Amy (anonymous@obgyn.net)
Wed Sep 6 16:47:54 2000

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Just to add my 2 cents about Lupron. I took it for 3 months -- just finished in fact. I didn't have any hot flashes.

My worst side effect was the emotional issues -- just about anything would make me cry -- any change of emotion, and the tears started flowing. I also experienced some vaginal dryness, but no decrease in sex drive (in fact, I think it increased).

The Lupron helped the pain for a while, but then it wasn't helping much anymore. Between the fact that it only helped a bit & the fact that I was crying 2 -3 times a day, I decided to quit.

The other things I noticed is that there was some hair loss (not enough to tell by looking, but I can feel the difference). I also bruised really easily. I would get nasty bruises for no reason & they would last forever.

That is my experience with Lupron.

Amy

-----Original Message----- From: Falk, Amanda [mailto:anonymous@obgyn.net Sent: Wednesday, September 06, 2000 2:41 PM To: Multiple recipients of list ENDO Subject: Re: Side Effects of Lupron

Vanessa,

Hi I was shocked to read in your post that you have had 6 laps. All I can say is, poor you! anyway, I hope that you will not have to resort to hysterectomy. I am happy to tell you about my experience with Lupron it has been kind of weird but I hope it will add to your arsenal of information. I think I have had worse side effects with Lupron than most people. For most people, the worst thing are the hot flashes. Almost everyone gets those and they REALLY suck. I also get nausea when I get hot flashes but again, I seem to be the only person I know who has that. For me, though, I am really struggling with having constant dizziness, and really bad dizzy spells. I seem to be in this monthly cycle where, about a week after my shot, I start feeling really dizzy all the time and continue to feel that way for about two weeks. Then it clears up and I am fine for the next two weeks. During that time I will have a constant level of dizziness and then spells of severe dizziness. I am taking drugs that help but still end up missing a few days of work every month. Apart from that, I feel more tired than normal and my weight has been fluctuating. Most people gain weight but I lost it initially. Strange.

On the positive side I have to say that Lupron has eased my pain considerably, and it seems to get better the longer I am on it. We will see what happens when I go off........

Hope this helps!

Love, Amanda "You'll meet the Lord in the furnace long before you ever meet Him in the sky." -Rich Mullins

-----Original Message----- From: anonymous@obgyn.net [mailto:anonymous@obgyn.net Sent: Wednesday, September 06, 2000 8:03 AM To: Multiple recipients of list ENDO Subject: Side Effects of Lupron

I have had endo for 10 years and just had my 6th lap and the pain has returned after a week. i need to buy some time until I decide if I want a hysterecomy ( I am 24 without children ( single)). I am thinking about asking my dr. to be put on Lupron I was on it before about 4 yrs ago. I don't remember the side effects. Can anyone tell me what sideeffects they have experienced.

--
Vanessa

Next message: Anne: "Re: Ovulation pain & endo"
Previous message: Falk: "Alternatives to Lupron"
Maybe in reply to: Vanessa: "Side Effects of Lupron"
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