ENDO Messages for September, 2000: Re: advice needed

Re: advice needed

From: tracy (anonymous@obgyn.net)
Tue Sep 5 07:59:20 2000

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In reply to: anonymous: "advice needed"

At Mon, 4 Sep 2000, anonymous wrote: >
>Hi All: I'm new to this forum. Went to gynecologist last week and told
>I have a large pelvic mass on the right side, possibly a dislodged
>fibroid, possibly a cyst, possibly an endometrioma. The docs want to do
>more tests (too much pain to stand the first one) and probably do a
>laparotomy (my doc thinks it's too large for a laparoscopy). The pain
>has gotten pretty bad. I used to run 20-30 miles a week; now I feel
>lucky if I can walk a few blocks without pain, and sometimes it just
>hurts for no reason. Does anyone have advice? How do the docs reach a
>definite diagnosis? Are there ways to treat with meds vs. surgery? If I
>have to have a laparotomy, what should I expect in terms of the surgery
>itself and the recovery time? Thanks to all! -- Amy

I was diagnosed with Endo in 1981. I did a lot of research before finally letting my doctor take a closer look. I had the laparotomy (same day surgery) only to explore the extent of my problem. At the time I was only 21. I was faced with a hysterectomy. The doctor cleaned up as much as possible and then I went through 9 months of Danocrine therapy. It shut my reproductive system down. A few irritating side effects were nothing compared to the pain of Endo. Unfortunately, the best thing to treat Endo is getting pregnant. Which becomes a vicious circle because you can't get pregnant for the Endo. My problems came about before all the latest research and new treatments. But mine worked. I am proud to say I stuck to my guns and did not have the hysterectomy. Took some advice from General Practioner who said NO Tampons, white cotton underwear, white unscented toilet paper and if you can afford them only natural fiber sanitary napkins. It may sound goofy but something worked. In three week I will be having a 1st birthday party for my daughter. It took a long time for this little miracle but she is healthly and very happy. I wish you pain free days and remission of this debilating disease.

Next message: ERIN: "Re: Still have pain 5 days after surgery....."
Previous message: Nicole: "Hyster 4mths ago.... Endo now back"
In reply to: anonymous: "advice needed"

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