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Re: New to forum...my story...(warning, may be long! lol)

From: Marlene (anonymous@obgyn.net)
Mon Jul 31 10:20:23 2000


Hi Melanie:

Sorry to hear of your pain and discomfort.

Welcome!!!! I found the forum about a month ago and found it to be so helpful and comforting to be with other endo sufferers.

No need to apologize about your long post....that's what the forum is for......

I too experienced cysts on my ovaries and the pain was excrutiating. I was very fortunate however that my endo symptoms occured after we had our family, I am 39 now and had my children when I was 23 and 25.

I hope that your current Doctor refers you to a gynecologist who is knowledgeable in treating endo.

Take care and pain free wishes to you.

At Mon, 31 Jul 2000, Melanie wrote: >
>Hi all! I have been reading through the posts and thought I would write.
>I am 24, married, no kids. Every month for over a year now I get really
>bad abdominal pain with the start of my period, usually starts at night
>and lasts through the next day. All I can do is curl into a ball and
>suffer through it since Tylenol and such does nothing to help.I often
>end up taking a sleeping pill so I can at least half sleep through the
>worst of it. My stomach bloats up and then the pain starts along with
>extreme shooting pain with having a bowel movement or sitting down too
>hard. Also occasionally pain with intercourse during other times of the
>month which gets worse as my period approaches. I went to doctor after
>doctor who all kept patting me on the head and telling me it was just
>"middlesmertz" and to go take some Motrin...I also tried to get pregnant
>for over a year with no luck and was told to just "keep at it"even after
>I told the doc about my pain. My husband and I began to get quite
>worried since my symptoms seemed to match endo and since we had been
>unable to conceive....I had to go on Accutane for my acne about six
>months ago so we had to stop "trying" and I had to go on b.c. pills
>since Accutane causes really bad birth defects. Pain has gotten no
>better since starting the b.c. pills and now seems to be lasting longer
>sometimes two or three days, I am lucky that I am a housewife and do not
>have to work...Anyway I decided to try one more time to get a doctor to
>help me and finally found a nice doctor that immediately ordered an
>ultrasound.Good thing since I had already decided that this time I was
>not leaving that hospital until someone did SOMETHING!lol The ultrasound
>came back last week and it found a large complex cyst on my right ovary
>and a lot of debris around the ovary and some fluid in the back of my
>pelvis. He is a general practice doctor so he is refferring me to the
>ob/gyn department so they can decide whether to take out the cyst and
>maybe the ovary or to just watch it for a few months and see what
>happens...Since complex cysts are also associated with endo and I seem
>to have lots of the symptoms I am very worried that I will never be able
>to have a baby and that this pain will never go away!I guess I'm just
>looking for some support and advise from others who have been through
>this...I'm sorry this is so long...
>thanks for your time...
>
>--
>Brightest Blessings,
>Melanie
>




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