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Re: endometriosis after complete hysterectomy(Pam)From: Peggy (anonymous@obgyn.net)Mon Jul 24 13:19:20 2000
At Mon, 24 Jul 2000, Pam wrote: > >In August of 1999 I was diagnosed with endo for the third time. The >first time I took a pill injected into my stomach, the second time I had >laser. This third time,after several tests,including colonoscopies, >barium enemas, ultrasounds, and barium swallows, I was informed I again >had endo and that the pain I was experiencing on my right side from the >middle of my stomach and below my right rib was possibly due to the fact >that the endo was attached to my intestines or bowel. A complete >hysterectomy was recommended. This was done in August and for about six >months after I experienced no pain. The pain slowly returned and it is >now at the point where I can't sleep at night. My surgeon is again >sending me for the same set of tests all over again, as it feels the >endo has returned. The pain is a constant burn all over my right side >and it feels as if my intestines are twisting. I constantly have >diarrhea and the pain keeps me up at night. The surgeon is suggesting >these test to eliminate all else, but still feels the endo has returned. >Can endo in fact cause all this pain and if so what is to be my next >step. I am 49 years old in good health with this exception. I am >taking Primarin .900. > >-- >Pam Pearce
Pam, Your story is all too familiar to me, I had a Laporoscopy assistted
vaginal hysterectomy and left ovary removed in 4/98,The pain returned
about 6-8 weeks later.within the next 2 years I had a barium test,3
laporoscopies,2 colonoscopies, a cystoscopy ,many vaginal and abdominal
ultrasounds and an MRI. With the last laporoscopy 11/99 I was diagnosed
with endo so the right ovary was taken at this time. I just completed 4
months of Lupron that did not help at all,my Hormone levels are elevated
for menopause,(Which means,it could keep the endo growing)I did not
continue with the lupron and my Dr. is going to recheck my levels next
month to see if they elevate further. If they do he will think on the
lines of there being an ovarian remnant, What will happen next? I really
don't know.As you and I both know, and I have been telling others on
here that hysterectomy is not a cure for for endometriosis! I too suffer
with the diarrhea.You might want to ask your Dr. weither being on the
premarin has caused your endo to resurface?Good Luck,If you have any
questions please do not hesitate to ask. I have been suffering with
this constant pain for 2 1/2 years now. I had the hysterectomy when I
was 38,I feel that I am being robbed of being able to enjoy my
children,My daughter is 17 and my son is 12, I guess I should be
thankful that this all didn't start sooner than it did
>
-- "FRIENDS THAT STICK TOGETHER" Peggy K.
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