ENDO Messages for February, 2000: Re: New Here, I've got Questions! (pain)

Re: New Here, I've got Questions! (pain)

From: angel (anonymous@obgyn.net)
Tue Feb 8 09:52:43 2000

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At Tue, 8 Feb 2000, anonymous@obgyn.net wrote: >
>Hi Amy,
>
>ger than 3 months,if so you are a
>candidate for a pain clinic,,just make sure you research your pain clinic or
>pain specialist and make sure they understand pelvic pain and they treat
>with narcotics,as its the stronger pain relief that we all seem to
>need,There are a few of us who attend pain specialists or clinics and we
>have our pain much better managed than the rest of the crew that don't.l
>take ms contin and oxycodone for break through pain,each pain clinic/doctor
>are different.At one stage i didn't sleep for 6 months and i looked
>deathly,that was while they tried to get 3 chronic pain states under
>control.l am doing better although i fight pain every day and sometimes.l am
>bed ridden and other days i am feeling ok and able to venture out for a few
>hours,this doesn't happen very often but i am trying to push
>myself,especailly while its summer.l do find sitting makes me worse and
>anything around my stomach,i couldn't wear under pants for along time or
>anything with a waist,it is really miserable and seat belts have hurt me for
>10 years now.Yes i have wanted to cry being out and in excruciating pain,its
>embarrassing and we are all normally so strong and we all hate for people to
>see the occassional break down or hormone battle,they are few and far
>between but anxiety attacks still bother me for no reason or so i think at
>the time.
>Good Luck Amy and i hope your pain settles soon,have you tried a hot water
>bottle or heating pad,i have an electric blanket,hot water bottle and my
>heating pad blew up.Its summer but while the pain is bad i use a hot water
>bottle and a fan,its crazey but it helps more than most things,although my
>stomach is scarred from the hot water bottle,they are 2nd degree burns but
>i will do anything while in pain,i start off with the hot water bottle in
>its cover but as the pain increases,the cover comes off,its desperation
>while in pain.
>All any of us want is relief.One doctor said he monitored my pain by how bad
>the scarring on my stomach and legs were,how sad he couldn't believe just my
>word.
>Also,if you are able to take anti inflammatories i would suggest you get
>some voltaren suppositories as these work the best especially after
>surgery,i always forget as i am allergic it to ant inflammatories but they
>are great in combination with are narcotic and it just depends on your
>system whether you may need something that is a milder narcotic or something
>stronger with between 30 to 60 mg of codine.Each of us have been using pain
>killers differently and it all depends how long you have suffered continuos
>chronic pain,to what will work for you personally.
>Ok i'm finished writing the intro to that book..lol
>l hope i have helped abit.
>Best Wishes,
>
>Belle.
>-----Original Message-----
>From: Amy <anonymous@obgyn.net>
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Date: Tuesday, 8 February 2000 4:01
>Subject: Re: New Here, I've got Questions! (pain)
>
>>Thanks for all the replies I've gotten. My dr will send me to someone
>>else (specialist) to check to make sure it isn't a bowel problem. I get
>>really frustrated about all this. I just found out about the PCOS these
>>past few months. I hate all these dr visits and still no answers.
>>Anyway, if they do the surgery it will have to be during the summer or
>>during next christmas break while I am out of school.
>>What I would like to know is what do you do for the pain? The only thing
>>that helps me is usually taking warm baths or laying down flat. How do
>>you sleep when you're in pain? I was in pain all last night and maybe
>>slept an hour the entire night. Do you ever want to cry when it gets
>>bad but you can't because you're in public? Also, does sitting make it
>>worse for you? I notice if I have to sit a while (and since I'm a
>>student I do plenty of that) it gets much worse. Just wondering...
>>Thanks for any help.
>>Amy
>>At Fri, 4 Feb 2000, Amy wrote:
>>>
>>>I am new here. I already have PCOS. But my gyn and GP both think I
>>>might have endometriosis. I am 22 with no kids. I am in pain a
>>>majority of the time (like now). It's worse when I am supposed to
>>>ovulate or have a period, but I have it most of the time, it's just not
>>>to the same degree. I have lower abdominal pain from belly button down
>>>to pelivc bone and between my hips, but most of my pain seems to be
>>>centered on my left ovary, I had an ultrasound and nothing showed up
>>>there so he said I don't have cancer. This is really frustrating, my
>>>gyn said he'd do the surgery to find out if I have it, if the pain got
>>>bad enough, but he wanted to check all my bowel things first to make
>>>sure it's not that. I also have very heavy, painful periods (cramps and
>>>low back pain). I have missed 4 periods this past yr though (from the
>>>PCOS) and the pain started back in July 1999. I am having doubts on
>>>whether or not I should have the surgery because I looked at other
>>>reasons that you might have pelvic pain. One was something was wrong,
>>>but it went away, but you still have the pain. Another was that victims
>>>of sexual abuse sometimes have pain there psychologically. So I am not
>>>sure what to do.
>>>Also does anyone here ever have real sharp vaginal pain up the wall of
>>>the vagina sometimes? I didn't know if that was a normal women problem
>>>or not. Could someone explain?
>>>Amy
>>
>Ialso had alot of pain in my abdomen and intercourse was completely out of the question for my husband and I.This went on for about 6 months.I nad 3 laproscopes and nothing was relieving the pain.My dr tried vicodin,relafen and a couple of other medications and nothing worked,I fineally decided to have a hysterectomy because I was beside myself with pain.It has been almost 7 months now and my pain is still not completely gone.
>begin 666 endo@obgyn.net.vcf
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>`
>end

--
angel

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