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Re: Amy

From: Amy (anonymous@obgyn.net)
Sat Feb 5 12:03:04 2000


Wow, that sounds a lot like me, I don't have Lupus, but I do have fibromyalgia as well. (So does my mother). It's nice to know I am not the only one. If you ever want to e-mail me that would be great. Oh, don't you hate it when people (especially men) come up behind you and start to massage your shoulders and neck? I always want to scream and punch them, it hurts so bad. Oh, the only other medical problems I have is tmj, lactose intolerance and several other allergies, but I guess everyone has something wrong them, just some things are easier to deal with than others. Oh, my pain started July 22, 1999 and the very next day I cried 12 times in one day. And yes my pain has been increasing just like yours. If I do any surgery then it won't be at least until the summer and I am out on summer vacation from school. Well, anyway I jst wanted to let you know how I feel. By the way have you checked out the PCOS discussion boards? I can get to them by going to http://www.pcosupport.org come by and visit there sometime. Do you know if there is a fibromyalgia discussion/chat board? Anyway I should go now. I hope to hear from you. Amy At Sat, 05 Feb 2000, Kristen wrote: >
>Amy,
>Your situation sounds a lot like mine. I am 27 with no kids. I started
>with pain November 17, 1998. I remember the exact date because it was my
>birthday. Before that I had not had a period for three years. At first
>the pain only lasted about a week when my period should have been but
>then it started lasting longer and longer until it was constant. It is
>always in the area of my left ovary but sometimes spreads to other
>areas. I have been diagnosed with PCOS, endo, fibromyalgia and lupus. I
>have had two surgeries to remove endo this past year. I am currently
>trying to get pregnant. I did lupron and spend much of my life in
>doctor's offices and ERs. I live in vicoden for pain. I can no longer
>work. I have constant cysts on my ovaries and no one is sure that I
>ovulate. I also have an abusive history involving molestation as a
>child, rape at 16 and a 3 year abusive relationship. If you would like
>to talk about these things, please feel free to write me. I also have a
>web site if you are interested.
>
>I wish you luck.
>Kristen



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