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Re: Lupron: From Beth
From: Jenn (anonymous@obgyn.net)
Sat Jan 15 16:38:44 2000
woohoo! Beth! I am so glad to hear of another person who had a good
experience with the lupron. I am not sure if my gyn will really let me try
it again or not if the pain and cramping come back again. We shall see. I
had a bone density scan in 98 and it was 100% perfect. I think though that
if I were to go back on it I would definitely ask for another one and that
would be able to let us know if any change has occured since the first one
and to monitor things while on treatment if I do go back on it. I am not
sure if that is an option for me like you had mentioned too. so you had
about 20 shots? pretty close to mine so that is good to hear! thanks for
the support too!
Jenn
At 11:50 AM 1/14/00 -0600, you wrote:
>Jenn, I too have had very positive results from Lupron. I had 3 laperscopies
>and after each surgery - in the recovery room I got my first Lupron
>injection. I had two series of 6 months and after the last lap, I had a
>series of 9 months. They all helped considerable and resulted in NO PAIN for
>about a year to a year and a half before the endo would return. I am now in
>pain again and my doctor & specialist say I cannot have any more Lupron due
>to the risk of osteoperosis later in life. I'm considering pregnancy or a
>hysterectomy. I have a 2 1/2 yr old son.
>
>I fully support your letter to Dateline. Good for you. I hope more people
>respond.
>
>Hugs, Beth
>
>>From: "Jenn" <anonymous@obgyn.net>
>>Reply-To: anonymous@obgyn.net
>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>Subject: Lupron
>>Date: Mon, 3 Jan 2000 19:33:37 -0600
>>
>>ladies here is a letter I wrote to Dateline. Let me know what you think of
>>it. I have not sent it to them yet but will. I am also planning to send one
>>to TAP. They were wonderful at giving me all the info i wanted a few years
>>ago. I have no complaints with them but i still want to forward it to them.
>>Please give me any input. again I realize that several of you out there did
>>not have good experiences with lupron but then again maybe some of you
>>newer
>>people are considering it. please just know that it is up to you and that i
>>encourage everyone to discuss this fully with the gynecologist they have. I
>>do not believe that I am the only one in this country let alone other
>>countries who had a great experience with it. please let me know what you
>>all think.....
>>
>> >To: Health@MSNBC.com
>> >From: Jenn <medterms@watchic.net>
>> >Subject: Lupron
>> >
>> >I am not sure whom I need to contact regarding the episode of Dateline
>>aired on January 2, 2000 but I would like to express that I thought it was
>>poorly done. As a 23 year old with endometriosis, I can relate to the pain
>>etc. that the women go through. However, with the need to find a way to be
>>pain free, I opted to take the Lupron injections. My gynecologist was open
>>with me and I did take the shots for 6 months at first and it took away all
>>of my pain. Yes, I did have the common side effects of the hot flashes and
>>mood swings but that was to be expected from all that I read. Then when
>>the
>>pain returned I went back on the lupron until it just didn't work any
>>longer
>>for me. I knew that the trials had been done for 6 months to 1 year but I
>>had approximately 32 injections. I do not regret it at all. For the time it
>>worked I was virtually pain free.
>> >
>> >I also realize that every woman reacts to these drugs differently and
>>maybe
>>I was one of the fortunate ones, but you can review any drug out on the
>>market and somewhere you will be able to find at least ten people (like the
>>ten women interviewed by Dateline) who develope some severe side effect or
>>other disease as a result of the drug they are given.
>> >
>> >Dateline had mentioned that TAP performed a study with approximately 200
>>women and then a percentage of them were said to have resigned from the
>>studay. But then how many women were interviewed by Dateline? Ten! And
>>how
>>many women out there across the world are taking lupron? More than ten! I
>>was also disappointed to see that Dateline didn't even try to show the
>>other
>>side of lupron....the women who were successful with the lupron. If I had
>>the option of going back on lupron I cannot say that I would decline. I had
>>a very good experience with it and I do not think that I am the only woman
>>to have a positive experience. It is also important for women considering
>>treatment options for endometriosis to find a gynecologist they trust. We
>>can do our own research, but if you cannot trust the health care provider
>>than of course the experience is apt to be a negative one. Having the
>>support from family and friends, as well as the health care providers, is
>>vital. Without any kind of support it is easy to feel that you are not
>>succeeding in treating the pain caused by endometriosis.
>> >
>> >I would encourage Dateline to conduct another interview regarding
>>endometriosis and the lupron treatment. I feel that many women out there
>>who watched your show may have been scared off by this segment and they may
>>not discuss this with their doctor and therefore not receive treatment that
>>could potentially give them life back.....a life without pain.
>> >
>>
>
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