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Re: Lupron <Jan>Jenn
From: JANET (anonymous@obgyn.net)
Wed Jan 12 16:58:00 2000
Jenn,
Hello. Yes i read the poem, it's beautiful.. I just wish you did'nt have
to lose an ovary.. Jan
-----Original Message-----
From: Jenn <anonymous@obgyn.net>
To: Multiple recipients of list ENDO <anonymous@obgyn.net>
Date: Tuesday, January 11, 2000 8:18 PM
Subject: Re: Lupron <Jan>Jenn
>Jan you are awesome! Thanks. I meant when i said something about "i know
>what that means" is that if my gyn talked with me about adeno it would work
>me all up and I know that a hyst would be needed to get rid of the pain. We
>discussed this in 98 before I had the MRI. He knows how badly I want a
>baby. did you ever read my poem......? okay okay guys.....I wont post it to
>the group AGAIN roflol!!!!!!!! I have sent it like a hundred times
>before.......oh well if anyone wants it I will send it. It was written for
a
>college class just before my surgery to remove the ovary.
>
>Jenn
>
>At 05:30 PM 1/11/00 -0600, you wrote:
>>Jenn,
>> Hi sweetie.. What did you mean by you know what that means? I have
>>adeno.. I've had 4 kids, although i had the last 3 preterm.. You'll be
able
>>to carry one, i'm sure of it.. You'll just have to be really cautious like
i
>>was.. Not bed rest, but cautious..And careful. And you don't need to thank
>>me for caring hon, its what i'm here for.. I'm beginning to think the
reason
>>for me being alive is to counsel the ones who need the advice, and help
the
>>ones who need to know more about the disease.. I think because of all i've
>>researched and the knowledge i've picked up, and the experience has made
me
>>stronger and made me learn that the reason i'm needed is to help people..
>>I'm almost thinking of changing the reason to go to college from nursing
or
>>PA, to counselor, or social worker.. I'm not sure though.. It's amazing
when
>>even your PT asks you for advice on something medical..hehe..
>> All my friends and some family call me before their docs too..
hehehe..
>>It's kinda weird sometimes, but i tell them what i think and then they go
to
>>the doc, and most of the time, they ask if i'm a nurse or that i should've
>>went to med school....hehe..lol.. I wish i had the cash to go.. If anyone
>>wants to pay for me to go and be the best, most compassionate and
>>understanding doc, please send money to: roflmao!!!! just kiddding.. I
>>would'nt want anyone thinking i'm trying to scam people..hehe.. just
>>kidding.. sense of humor please.. Jan
>>-----Original Message-----
>>From: Jenn <anonymous@obgyn.net>
>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>Date: Monday, January 10, 2000 10:27 PM
>>Subject: Re: Lupron <Jan>
>>
>>>well jan the pain dr said that he felt i might not be able to withstand a
>>>pregnancy someday due to the pain i was having. but since it isnt like
that
>>>now maybe not. i hope it doesn't come back etiher this week. i am
watching
>>>it trust me! i had an MRI for adeno and they said it was neg but I think
i
>>>do have adeno. my gyn kept saying endo for years and after 5 years it
>>>finally showed up. he had mentioned adeno about 3 years ago too but it
was
>>>not til july 98 that we did a MRI cause he wanted to rule it out. if i
have
>>>to go back soon to see him for this pain i will mention it again as a
>>>possibility to keep in the back of our heads unless he thought that but
>>>doesnt want to get me worked up cause i know waht that means....thanks
for
>>>caring..
>>>
>>>Jenn
>>>
>>>At 09:34 AM 1/10/00 -0600, you wrote:
>>>>Jenn,
>>>> Hi hon.. Is your doc saying you cannot hold a pregnancy, because you
>>>>have adenomyosis? Because that's what deteriorates your uterus. Thats
what
>>>>did mine in anyway.. My uterus is sooooo soft and nasty, i'm surprised
it
>>>>held C.J. as long as it did.. Do you have adeno? Or has your doc said
>>>>anything about a possibility?
>>>> I hope you can carry a baby, even if its not completely to term.. My
>>>>last 3 were'nt to tewrm. They were 5 weks early, and 6 weeks early..(the
>>>>boys both 6, and girl 5.) Jan
>>>>-----Original Message-----
>>>>From: Jenn <anonymous@obgyn.net>
>>>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>>>Date: Sunday, January 09, 2000 4:22 PM
>>>>Subject: Re: Lupron <Jan>
>>>>
>>>>>Lori/smurf.....I am so sorry that you have such troubles daily. I truly
>>>>hope
>>>>>that I never have problems later on in life. I already know that one
pain
>>>>dr
>>>>>had even mentioned to me that my uterus may not be able to handle a
>>>>>pregnancy b/c of the pain I have had with it. Now I know that the pain
>>has
>>>>>returned although I am greatful that it is not daily and i hope it was
a
>>>>>freak thing recently. We shall see but then again I was wondering if it
>>>>>would skip this time b/c I only have one ovary but then again no pain
>>from
>>>>>that ovary just my uterus......so could this be independent of the
ovary?
>>>>>maybe it is. not sure. yeah i guess it is a risk but it is a risk I
would
>>>>>take again....since I am not in the position to be trying to get
pregnant
>>>>>yet. someday and i hope it is sooner than later....lol! i hope you are
>>>>>doing okay.....how are you? let me know okay?
>>>>>
>>>>>Jenn
>>>>>
>>>>>At 10:27 PM 1/8/00 -0600, you wrote:
>>>>>>After my lupron injections I became pregnant immediately...during the
>>>>>>pregnacies I had a lot of difficulties...one thing being unexplained
>>pain
>>>>in
>>>>>>just about every part of my body. Then in the years to follow (this
was
>>>>>>61/2 years ago) the pain continued...some days would be worse than
>>others.
>>>>>>After many tests and a few doctors I was diagnosed with
fibromyalgi...it
>>>>is
>>>>>>thought that Lupron is the reason for this. I now suffer daily and
>>>>struggle
>>>>>>with pain in just about every part of my body. I do truly believe
that
>>>>the
>>>>>>lupron is the cause of all of this....the hard part is getting some of
>>>>these
>>>>>>doctors and researchers to listen up and take this seriously. I know
>>many
>>>>>>feel that Lupron is their only hope...i understand that all to well,
>>but
>>>>it
>>>>>>is only a temporary treatment with the potential to damage your body
and
>>>>>>soul in a very big way. Ok enough said from this big mouth...lol I
>>just
>>>>>>want everyone to know the true facts of what this drug can do to a
>>person.
>>>>>>if you have any questions please feel free to ask away..Hugs
Lori/Smurf
>>>>>>Happiness is a journey, not a destination. Work like you don't need
>>>>money.
>>>>>>Love like you've never been hurt. And dance like no one is watching.
>>>>>>
>>>>>
>>>>
>>>
>>
>
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