Re: Lupron
From: Jenn (anonymous@obgyn.net)
Mon Jan 3 19:16:12 2000
Thank you Kellie! I might send one to my gyn too just so he can take a look
at it. I know he would agree with me from our conversation about it this
morning. At the same time we said the exact same thing! lol
I have never sent anything like this before so I was nervous about sending
it. I havent yet but I am going to. take care and thanks again.
Jenn
At 08:13 PM 1/3/00 -0600, you wrote:
>Jenn,
>
>Excellent letter! I couldn't have said it better myself!
>
>Kellie
>>----- Original Message -----
>From: "Jenn" <anonymous@obgyn.net>
>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>Sent: Monday, January 03, 2000 8:33 PM
>Subject: Lupron
>
>> ladies here is a letter I wrote to Dateline. Let me know what you think of
>> it. I have not sent it to them yet but will. I am also planning to send
>one
>> to TAP. They were wonderful at giving me all the info i wanted a few years
>> ago. I have no complaints with them but i still want to forward it to
>them.
>> Please give me any input. again I realize that several of you out there
>did
>> not have good experiences with lupron but then again maybe some of you
>newer
>> people are considering it. please just know that it is up to you and that
>i
>> encourage everyone to discuss this fully with the gynecologist they have.
>I
>> do not believe that I am the only one in this country let alone other
>> countries who had a great experience with it. please let me know what you
>> all think.....
>>
>> >To: Health@MSNBC.com
>> >From: Jenn <medterms@watchic.net>
>> >Subject: Lupron
>> >
>> >I am not sure whom I need to contact regarding the episode of Dateline
>> aired on January 2, 2000 but I would like to express that I thought it was
>> poorly done. As a 23 year old with endometriosis, I can relate to the pain
>> etc. that the women go through. However, with the need to find a way to be
>> pain free, I opted to take the Lupron injections. My gynecologist was
>open
>> with me and I did take the shots for 6 months at first and it took away
>all
>> of my pain. Yes, I did have the common side effects of the hot flashes and
>> mood swings but that was to be expected from all that I read. Then when
>the
>> pain returned I went back on the lupron until it just didn't work any
>longer
>> for me. I knew that the trials had been done for 6 months to 1 year but I
>> had approximately 32 injections. I do not regret it at all. For the time
>it
>> worked I was virtually pain free.
>> >
>> >I also realize that every woman reacts to these drugs differently and
>maybe
>> I was one of the fortunate ones, but you can review any drug out on the
>> market and somewhere you will be able to find at least ten people (like
>the
>> ten women interviewed by Dateline) who develope some severe side effect or
>> other disease as a result of the drug they are given.
>> >
>> >Dateline had mentioned that TAP performed a study with approximately 200
>> women and then a percentage of them were said to have resigned from the
>> studay. But then how many women were interviewed by Dateline? Ten! And
>how
>> many women out there across the world are taking lupron? More than ten! I
>> was also disappointed to see that Dateline didn't even try to show the
>other
>> side of lupron....the women who were successful with the lupron. If I had
>> the option of going back on lupron I cannot say that I would decline. I
>had
>> a very good experience with it and I do not think that I am the only woman
>> to have a positive experience. It is also important for women considering
>> treatment options for endometriosis to find a gynecologist they trust. We
>> can do our own research, but if you cannot trust the health care provider
>> than of course the experience is apt to be a negative one. Having the
>> support from family and friends, as well as the health care providers, is
>> vital. Without any kind of support it is easy to feel that you are not
>> succeeding in treating the pain caused by endometriosis.
>> >
>> >I would encourage Dateline to conduct another interview regarding
>> endometriosis and the lupron treatment. I feel that many women out there
>> who watched your show may have been scared off by this segment and they
>may
>> not discuss this with their doctor and therefore not receive treatment
>that
>> could potentially give them life back.....a life without pain.
>> >
>>
>
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