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Re: ENDO Pain
From: Allison (anonymous@obgyn.net)
Mon Jan 3 12:22:01 2000
Why am I getting all these e-mails not addressed to me??? Kind of
impersonal I think.
Allie
>From: "Robert" <anonymous@obgyn.net>
>Reply-To: anonymous@obgyn.net
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Subject: Re: ENDO Pain
>Date: Mon, 3 Jan 2000 13:09:51 -0600
>
>Kristen:
>I certainly hope you are feeling better by the time you get this message.
>You have certainly had a very difficult time of it. I wish you all the
>luck in achieving pregnancy and I wish you many pain free days in the near
>future (hopefully). I hate how this disease shatters so many dreams and
>causes so much pain. I wish you many good times to come. Happy New Year.
>Take care,
>Leah S.
>bobsmountain@compaq.net
>Rancho Cordova, CA
>
> -----Original Message-----
> From: Kristen <kas5@lehigh.edu>
> To: Multiple recipients of list ENDO <endo@talk.obgyn.net>
> Date: Tuesday, December 21, 1999 5:05 PM
> Subject: Re: ENDO Pain
>
> Beth,
> I started having pain November 17, 1998. I can remember the exact date
>because it was my birthday. What a present. Prior to that, I had not had a
>period in three years. Before that, it was very irregular. When I first had
>my period it was very painful but when i went on the pill, it wasn't so I
>stayed on it.
> My gyn took me off when I complained of pain. I had my first lap New
>Year's Eve last year. They found no endo but much damage to my reproductive
>organs. The doc blamed this on trauma.
>
> My pain started out cyclic but soon became constant. I was put on
>disability from work. My gyn wanted to do a LUNA procedure to help with the
>pain. He scheduled my second lap Memorial Day Weekend. He went in with the
>sole purpose of doing the LUNA and was surprised to see endo. He said it
>grew very fast because there was none in December. I had also been on
>Lupron for a few months prior to surgery so he was doubly surprised. His
>feeling has been let's treat you as though you have endo. He called it
>atypical because he couldn't see it and it didn't respond to treatment. He
>removed what he saw in May. I still had no pain relief.
>
> I had a colinoscopy in April. He did five biopsies and surprise endo
>in the GI tract. My feeling is that it is there again but we have consulted
>two other gyns and have decided that there will be no more surgery right
>now. I am trying to get pregnant. I tried 6 cycles of clomid with no
>success only increased pain. I also started getting lots of cysts. Oh,
>during my first surgery they saw cysts and drained them. My gyn now thinks
>I also have PCOS.
>
> Our focus right now is to do whatever it takes to get through the pain
>until I get pregnant. I will start Perganol next month. My husband had a
>semen analysis and he is fine so it's all me. I never thought it would be
>this hard. The pain is terrible and sometimes confines me to bed. The
>holidays are going to be hard because that is the time in my cycle when it
>gets the worst. From ovulation until my period ends it just gets worse. Sex
>is painful and I dread it now. Even just the speculum for an exam is bad.
>The exams kill me. Once I have one, I am in bad pain for days. I was
>hospitalized for pain once. I frequently end up at the ER. I have also been
>very depressed. I was fired from my job while on disability and I just feel
>like I can't do anything anymore.
>
> It has hit me particularly hard because I also have Fibromyalgia and
>Lupus and probably Poly Cystic Ovarian Syndrome (PCOS). We are also looking
>at interstitial cystitis.
>
> That's my story. If you would like to read moe, I have a web site.
>Here is a link:
> http://www.lehigh.edu/~kas5/kas5.html
>
> I have some helpful links there. I hope I haven't been too long.
> Kristen
>
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