Re: Headaches from Lupron (Stacy)
From: Terry (anonymous@obgyn.net)
Mon Jan 31 21:29:19 2000
Hi Stacy,
I'm 37. I've had Endo for 24 years. I have been on Danazol twice
(helped once), BCP's (allergic), Depo-provera (gained a whopping 95 lbs
in 6 mos!!!), Lupron (the drug from Hell!!! Side effects are
horrendous!!!), plus the assorted surgeries over the years. I have been
on all kinds of pain meds. As time goes on I'm losing my strength and I
feel like I am being beaten into the ground by this. Who wants to be in
constant pain ALL THE TIME? I will NOT let this beat me! Lupron was my
last hope. I wanted kids and that was the only reason I took it. But I
want my life back and the only way I can see any chance of that
happening is by having a Hysterectomy.
You shouldn't concentrate too much on the weight issue. Perhaps if they
(family, friends, etc.) could spend 1 day in your shoes it would be a
different story! God blessed me with a wonderful husband and supportive
family (even the in-laws!).
Have you ever tried Librax for the irritable bowel problems? Works
wonders for me.
At least try the Danazol--you may not have the weight gain side effects.
Not everyone gets the same effects. Good luck to you. At least without
your period you'll be pain-free!!!
Terry Jo.
At Mon, 31 Jan 2000, anonymous@obgyn.net wrote:
>
>Hey Terry Jo....
>15-20 pounds just blew me off the chair. It's taken a long time to get my
>weight back down. I eat almost nothing and exercise A LOT. I really hope
>this isn't the norm. Because of my compulsive dieting and hatred of food, I
>have to say, I'd rather suffer with endo than go through what I've gone
>through the past couple of years. Everyone said I was anorexic, wayyyy too
>thin, quit smoking, so what if you gain weight, big deal.....well that was of
>course till I did. Let's just say my husband, family, friends, etc etc etc
>were less than supportive. Sort of like giving an alcoholic a buffey of
>liquor. Someone with an eating disorder only jumps in full force with a lot
>of anger and punishment inside when everywhere you turn people are telling
>you wow you gained weight, got fat, etc etc etc. It's been a long hard road,
>laxatives, starving, eating rabbit food, fucking around with my body so
>intensly and I think all this has done is amplified my endo and bowel
>problems. Can't win can ya? Would you believe, I'm back in size 4 or 6 and
>now all the people that jumped up my ass about gaining weight are STRESSING
>THEIR CONCERN about how thin I'm getting and how fast......I DON'T THINK SO!
>When I needed them, they only made a bad situation worse. Like I mentioned,
>I've done quite a bit of research lately....one thing I read is that endo can
>get worse when your stomach gets completly empty....well now I know why
>things hit a lot harder all at once......How about the deeper voice, facial
>hair, acne.....I'm definately getting ready to shit-can this med before
>filling it. lol
>Terry, how old are you and how long have you had this......what procedures
>have you undergone. A Hysterectomy is so final, are you sure about this???
>Stacy
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