Re: Headaches from Lupron
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From: Terry (anonymous@obgyn.net)
Mon Jan 31 20:15:24 2000
Hi Stacy,
For me, the weight gain was not much--maybe 15-20 lbs. Well worth it if
Danazol helps! I am kind of suprised that your Doctor is going to keep
you on it for so long (1 year), I thought the longest advisable time was
6 mos. You might want to check that out with your Doc.
Your problems and mine are almost similar (irritable bowel, cysts,
etc.), so believe me I know what your going through. I have decided to
go the Hysterectomy route as my choices have run out. So sometime in
the next month or two (I don't have the date yet) I'll be at the end of
my fight with Endo. My only regret is that I haven't any children. That
is what kept me from getting a Hysterectomy in the first place. Terry
Jo.
P.S. If you exercise--even a little, the weight turns to muscle. Thats
what happened to me. Maybe because of the Testosterone?
At Mon, 31 Jan 2000, anonymous@obgyn.net wrote:
>
>Hi Terry Jo....thanks so much for responding to me. I've had so many
>problems for so long on and off and I just kept trying to block them out and
>let them pass but lately things have gotten much worse where I finally seeked
>help. I had a lap 4 years ago, removed a fybroid and hemoragic cyst...LEFT
>the endo because I hadn't had children. Now it's worsened. I went to a gyn
>and a gi today....turns out I have irritable bowel syndrome as well as
>worsening endo....YUK! Anyway, my gyn is starting me on Danazol and said
>she'll probably keep me on it for a year. "increased appetite" SHIT....I
>have a slight eating disorder, never went over 98 pounds a day in my life,
>quit smoking and gained almost 60 pounds.....three years I've done everything
>imaginable and I've started smoking again and have dropped about 35 pounds
>and still shooting back to about 110. The last thing I need is increased
>appetite....HOW BAD ARE YOU TALKING?????? Stacy
>
>In a message dated 1/31/00 9:21:33 PM Eastern Standard Time,
>latinmass@catholic.org writes:
>
><< I started Danazol at 18 years old (200mg x4/day for 6 mos.). The side
> effects I suffered were deepening of my voice, increased appetite, and
> facial hair. BUT at that point in my life, Danazol DID help. I tried
> going on it a second time when things got bad but it never worked as
> well as it did the first time. As for side effects, they are a whole
> lot milder than the dreaded Lupron side effects! Terry Jo.
>
> At Mon, 31 Jan 2000, anonymous@obgyn.net wrote:
> >
> >Hi Joan.....has your doctor given you Danazol? I was diagnosed 4 years ago
> >with Endo but just recently it has gone out of control. I finally went to
> >the specialist today thinking the absolute worst from all my research and
>she
> >is putting me on Danazol. Has anyone used this???? Is it good???? Are
> >there terrible side effects????
> >If you haven't already tried this and the Lupron isn't working, maybe you
> >should. I start it tomorrow so I'll let you know if it's good or not. GOOD
> >LUCK!!!
> >>
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