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Re: Headaches from Lupron
From: Terry (anonymous@obgyn.net)
Mon Jan 31 17:30:37 2000
Hi Joan,
When I was on Lupron (1 month shot dose) I was getting BLOCKBUSTER
headaches. Also, chest pain like you couldn't believe. But of course
its never from the Lupron, right? I got sent back and forth to the
Doctors just like you did. I decided that enough was enough. No more
Lupron for me. I have opted for the Hysterectomy. I'm shaking in my
boots over this decision but I've run out of choices. I figure thats
the only way I'll ever get my life back. I really feel for you because
I have been in Lupron-Hell and it isn't pretty! Good luck! Terry Jo
At Tue, 25 Jan 2000, joan wrote:
>
>Hi. I'm Joan, you may have seen my name on some of the replies I've
>received. You all seem to have alot of good information and advice. So, I'm
>hoping someone can help me too. I was given my first Lupron shot on Dec 10.
>My doctor told me that I would still have my period in December, but
>shouldn't have any after that. I chose the 3 month shot, figuring that way,
>I'd only need two. It was supposed to be 11.25mg. He called me a few days
>later and told me that they "accidentally" gave me the dose that is usually
>given to men with prostate cancer. A 22.50mg dose. When I started my period
>on December 21, I started with the usual painful cramps, and migrane
>headache. Only, the headache hasn't completely gone away yet! I've called
>and called and called again, to let him know how awful I feel, and he's
>telling me that the headache isn't from the Lupron, and that I should see my
>primary care doc. So, I went to my primary care doc, and he told me that I'm
>experienceing Hypoestrogen symptoms, and my Gyn should be treating me for
>it. When I told my Gyn what the PCM told me, he said I should just get a
>referral to a neurologist from my PCM. Now, I guess you should know that my
>husband is in the Air Force, and as most people know, we don't always get
>the best or most up to date medical care. Some days are better than others
>with the pain. My cramps have not gone away as promised. And neither of my
>docs want to give me any more narcotics for my headaches. Yesterday I woke
>up at 4:00am, with a headache, but it wasn't too bad yet, so I tried to go
>back to sleep to "sleep it off". But when the alarm went off at 6:30, I
>thought my right eye was going to explode!!! My husband drove my daughter to
>school for me, and we only have one car, and my 21 month old son was
>sleeping. I took 2 Fiorcet at 7 am, and at 8 am, I called the obgyn clinic,
>and requested for my doc to call me back. At 9 am I took 2 excedrin
>migraine, and got into a hot bath, in the dark. At 9:30 the doc still hadn't
>called me back, so I called the office again, and was told that he wasn't
>even there. So, I asked to speak to who ever was taking his calls. They gave
>me to a nurse, who spoke to another doc, who told me that in the long run,
>hormone replacement should get rid of my headaches, but there was really
>nothing they could do for me at that time, unless I could get to the
>emergency room, where they would take 6-8 hours to give me a shot! So, I
>pretty much just stayed on the couch all day, and let my son run wild, and
>by 7 pm, my headache finally went away. But, by the time I got relief from
>it, I had taken a total of 4 fiorcet, 4 excedrin migraine, 2 motrin 800mg.,
>and 50mg of Demerol. The nurse did give me an appointment for friday
>morning, but is it just me or is this ridiculous? I like many of you, have
>insomnia also. I slept good from 8 till midnight, when my headache returned!
>I got up and took another Demerol, and still didn't get any sleep. My son is
>down for a nap now, and I should be resting, I guess, but I really needed to
>vent! My husband has been very patient through all of the problems
>associated with this endo stuff, but I feel like I'm complaining all of the
>time. I used to be such a happy go lucky kind of person. He has decided to
>come to my appointment with me on friday, so he can be my eye witness to the
>hell I've been going through. I'm just really fed up with the whole thing! I
>had enough pain with the endo, now I have more from the Lupron! I've decided
>that since I have the 2 kids I've always wanted, and my husband had a
>vasectomy after our son was born, I'm going to go ahead and have the
>hysterectomy. Any thing to hopefully, stop some of this pain... If any one
>has some words of wisdom, or encouragement in this area, I could really use
>it. Thanks for being patient with me while I rant and rave. I do appreciate
>it! Joan
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