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Juvenile papillomatosis in my daughter; breast cancer risk for her and for me!

From: Susan (anonymous@obgyn.net)
Mon, 8 Sep 2003 14:04:50 -0500 (CDT)

I am so thankful to have found this Forum, and I'm hoping someone can answer my question.

My daughter, age 22, had a breast lump removed in August. The biopsy report said it was Juvenile papillomatosis. We have an excellent surgeon, who is active in Breast Health. When he told us that it was benign and was unlikely to recur, we were SO relieved and thankful to God. And we thought that was the end of it.

A week after her routine checkup after the surgery, the surgeon called me today. My heart sunk as I saw the name of his practice on our Caller ID. He wanted to reassure me that my daughter's lump WAS benign, but...

It seems that there's an increased risk of breast cancer for the MOTHERS of the patient having JP! The doctor said 50% and at first, I thought he meant a 50% greater risk than normal, but no, it's 50% of mothers of JP young women develop breast cancer!!! Out of 100 mothers of JP patients, 50 get breast cancer. Now he said that doesn't mean that I exactly have a 50/50 chance. It's those crazy statistics.

He was doing some research into this and wanted to let me know. Talk about dropping a bomb... Any maternal aunts would be at risk also (I'm an only child).

Apparently there isn't an increased risk of sisters of the patient (I have two other daughters). But he did say that my daughter should be vigilant about her self-exams and her once-a-year breast exam by a doctor. So there is a little increased risk. From what little I've found on the internet, if this is the only occurance of JP and no one else in the family gets cancer, then her risk is very low.

I'm going to see the surgeon later this week and my husband is going with me. The doctor said he could do an MRI and/or a "ductal lavage" (sounds ghastly!) - apparently those catch cancers sooner than a mammogram.

I have no family history of breast cancer, but I don't have much family. No siblings and my mom was an only child. My mom has never had breast cancer and she is 83.

Could you please tell me more about this? I'm a nervous wreck... I start teaching my piano students today and it seems my world is turned upside down.

Thank you SO much in advance. God bless you. 

--
Susan
moot96@aol.com

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